Do you reside in Calgary or area?
Do you or someone you care for have a cardiovascular/pulmonary condition?
Would you like to participate in a study focus group?
If you said “Yes” to the above, click here for more details.
Category Archives: Patient Voice
What? Listen to Patients?
The importance of the patient is becoming more recognized in the healthcare sector. However, in many instances, including the pharmaceutical area, the patient is seen as simply something to talk to or to talk about.
According to a recent blog post by Mike Rea, this stance is limited and limiting in terms of who patients are and what they have to offer. As he asks in his post.
But, instead of talking to patients, what if we started listening? Not just to what they ‘need’, but what else they want? There are so many incredible groups out there now – potent patient groups (MMRF, MDA, Savvy Patients and more), who want to talk to us, who want to share. But, start to listen, and there will be a hundred hands that go up to stop you doing that.
Click here to read the full article.
Pain…Pain….Go Away!
If you or someone you know has been affected by pain, here is something you may find of interest.
A group of Albertans is developing the Alberta Pain Strategy. The purpose of the strategy is to:
- Outline a coordinated, provincial approach to addressing the complex issue of pain, starting with priorities;
- Capture the considerable amount of work already underway across the province related to pain and the use of opioids within a single strategy document;
- Build on successes and identify and focus on the remaining gaps.
To this end, the Alberta Pain Strategy team is seeking your thoughts, feedback and input. Please take a few minutes to read this short document and complete the online survey found here. The survey will be available until September 17, 2018.
Patient Scholarships | Canada Health Infoway
Are you a patient or caregiver who is passionate about helping shape health care in Canada?
As part of our commitment to amplifying the patient voice, we are pleased to offer a limited number of scholarships to patients, caregivers, and family members to attend the 2018 Infoway Partnership Conference in Montreal on November 13-14, 2018.
Click here for more information.
Developing an Osteoarthritis Tool for Patients – Get Involved
The College of Family Physicians of Canada and the Centre for Effective Practice, in partnership with the Arthritis Alliance of Canada (AAC), developed the Osteoarthritis (OA) Tool A that helps family physicians work with patients who have suspected, new or established osteoarthritis of the hands, knees and/or hips. Related to this family physician tool, a new working group of the AAC is developing a patient version. To find out more about this patient tool and how you can get involved in its development, click here.
New Opportunity
Are you over 20 yrs old? Do you have knee #osteoarthritis and experience pain most days of the month? Would you like to participate in knee osteoarthritis-related research? If you answered “Yes” to the above questions, here is an opportunity that you may find interesting. Click on the image below to read the document more easily.
Who Needs to be Transparent?
There is much discussion around the need for transparency in the healthcare sector, with patient advocacy groups being a strong voice in this discussion. However, what about their own transparency?
“Pharmaceutical companies gave at least $116 million to patient advocacy groups in a single year, reveals a new database logging 12,000 donations from large publicly traded drugmakers to such organizations….
The database, called “Pre$cription for Power,” shows that donations to patient advocacy groups tallied for 2015 — the most recent full year in which documents required by the Internal Revenue Service were available — dwarfed the total amount the companies spent on federal lobbying. The 14 companies that contributed $116 million to patient advocacy groups reported only about $63 million in lobbying activities that same year.
Click here to read the full article.
Paramedic and Seniors on the Move
When an on-duty paramedic walks into a building, it is typically to provide medical care and services to someone. However, when the paramedic is Adam Loria and the facility is the Whitehorn Village, something else may be occurring.
Click here to read the full story.
Difference Makers Wanted
“Stakeholders within a system have within them the creativity and wisdom to confront even the most difficult challenge” –Juanita Brown
What are you doing on Thursday, March 29th from 5:30 p.m. – 7:30 p.m. MST? Why not take part in this exciting opportunity to innovate our health system! Click here to register for this free event.
Senior’s Healthcare in Alberta – Have Your Say
Do you live or work in the province of Alberta and are you:
- an older adult (65 years of age and over),
- a caregiver of an older adult (spouse; family member; friend; neighbour), or
- a clinician or health/social care provider (doctor; nurse; care aides; allied health provider; pharmacist; social worker) working with older adults?
If so, the Scientific Office of Alberta’s Seniors Health Strategic Clinical Network invites you to complete the following survey. By responding to the survey, you will be helping to determine the direction/priorities for future research and initiatives in the area of seniors’ health. Thanks in advance for your participation.
