Sleep apnea?

If you suffer from sleep apnea and would like to share your experience, here is an opportunity to do so.

Get Involved and Add Your Voice

The Neurosciences, Rehabilitation, and Vision Strategic Clinical Network (NRV SCN) is looking for patient and family representatives to respond to their patient engagement survey.

  • The scope of this new SCN includes:
      • neurological disorders (including Parkinson’s disease, Multiple Sclerosis (MS), epilepsy, dementia and Alzheimer’s disease), neuromuscular disorders (including spinal cord injury and Amyotrophic Lateral Sclerosis (ALS, or more commonly, Lou Gehrig’s disease)), and brain injuries;
      • all forms of physical rehabilitation (which may include working with a physiotherapist, occupational therapist, speech pathologist, respiratory therapist, recreation therapist, audiologist, chiropractor, or other rehabilitation specialist); and
      • all eye disorders (including cataract, glaucoma, macular degeneration, diabetic vision loss and other eye disorders).
  • The combined results received from this survey will be reviewed by the NRV SCN Leadership Team, presented at an upcoming Core Committee meeting and used to help inform the priorities of this new SCN.
  • If these clinical areas are applicable to you as a patient and family advisor, we invite you to complete this survey, or share the survey link and attached poster with others who may be interested in providing input.
  • The survey is open from December 21st, 2018 until January 21st, 2019 and should take from 10-15 minutes to complete. It can be found here.

Feedback Requested

Are you a patient or family member who uses Internet and/or television services when in an Alberta Health Services’ facility? If so, AHS is inviting you to share your thoughts about the current television and wireless internet services being offered. The feedback you provide through this brief online survey will help to ensure a reliable and positive user experience – now and in the future.

To access the survey, please click the following link: Take Me to the Survey

The survey will be available until Saturday, December 15, 2018″ and all responses will be kept confidential.

Pain…Pain….Go Away!

If you or someone you know has been affected by pain, here is something you may find of interest.

A group of Albertans is developing the Alberta Pain Strategy. The purpose of the strategy is to:

  • Outline a coordinated, provincial approach to addressing the complex issue of pain, starting with priorities;
  • Capture the considerable amount of work already underway across the province related to pain and the use of opioids within a single strategy document;
  • Build on successes and identify and focus on the remaining gaps.

To this end, the Alberta Pain Strategy team is seeking your thoughts, feedback and input. Please take a few minutes to read this short document and complete the online survey found here. The survey will be available until September 17, 2018.

Senior’s Healthcare in Alberta – Have Your Say

Do you live or work in the province of Alberta and are you:

  • an older adult (65 years of age and over),
  • a caregiver of an older adult (spouse; family member; friend; neighbour), or
  • a clinician or health/social care provider (doctor; nurse; care aides; allied health provider; pharmacist; social worker) working with older adults?

If so, the Scientific Office of Alberta’s Seniors Health Strategic Clinical Network invites you to complete the following survey. By responding to the survey, you will be helping to determine the direction/priorities for future research and initiatives in the area of seniors’ health. Thanks in advance for your participation.

What’s Important to Seniors’ Health in Alberta?

Do you live or work in the province of Alberta and are you:

  • an older adult (65 years of age and over),
  • a caregiver of an older adult (spouse; family member; friend; neighbour), or
  • a clinician or health/social care provider (doctor; nurse; care aides; allied health provider; pharmacist; social worker) working with older adults?

If so, the Scientific Office of Alberta’s Seniors Health Strategic Clinical Network invites you to complete the following survey. By responding to the survey, you will be helping to determine the direction/priorities for future research and initiatives in the area of seniors’ health.

Are you a caregiver to someone with dementia?


In an effort to raise the voice of caregivers, Carers Canada and the Canadian Home Care Association are seeking friends and family members who care for a person with Alzheimer’s disease and other dementias to share their experience by completing a private and secure on-line survey. The survey should take about 15 minutes to complete.

  • Feedback received from this survey will be used to inform the federal government in advancing Bill C-233, an Act respecting a national strategy for Alzheimer’s disease and other dementias. This Act directs the federal Minister of Health to develop and implement a comprehensive national strategy for the care of people living with Alzheimer’s disease or other forms of dementias, as well as their families and caregivers.
  • Please note that the survey closes on February 5, 2018.

Health Canada Is Seeking Your Input

Health Canada is modernizing its approach to disclosing clinical information on drugs and medical devices to support advances in medical science and help improve patient care. Today, Health Canada published draft regulations in Canada Gazette l that propose to make clinical information in drug and medical device submissions publicly available after the Department has completed its regulatory review process.

Click here to continue reading.

Feedback Requested

Your insights and suggestions are being sought as a means of improving Alberta’s Palliative and End-of-Life Care (PEOLC) website. By perusing the website and completing a short survey, you will be helping to ensure that the information provided is applicable, accessible and easy to understand. Please see below for additional details.

The provincial Palliative and End-of-Life Care (PEOLC) website has been available to all Albertans since May 2015. This provincial online resource allows Albertans and health care providers convenient access to trusted, evidence-based palliative and end-of-life care information that supports and enhances quality of life and quality of care. Creation of this website was one of the recommendations that came out of the PEOLC Alberta Provincial Framework (2014) and was supported by the Provincial Palliative and End-of-Life Care Innovations Steering Committee (PPAL/ EOL ISC). Implementing an evaluation plan for this website is a deliverable on the provincial PEOLC timelines and planning document for the 2017/18 fiscal year. We have developed an online feedback survey as part of the provincial PEOLC website evaluation plan.

We want to hear, for example, did you find information you were looking for, is the website easy to navigate, did you notice any gaps in the content? Actions requested:

  1. Please visit our provincial PEOLC website: https://myhealth.alberta.ca/palliative-care
  2. Please complete the brief online feedback survey by Oct. 5 by clicking on the following link: https://survey.albertahealthservices.ca/TakeSurvey.aspx?SurveyID=PEOLC_website

We will use this information to continue to enhance the website for all Albertans.

Today is the last day to have your say.

The College of Family Physicians of Canada (CFPC) and its key partners, Choosing Wisely Canada and the Canadian Cancer Action Network, are dedicated to supporting family doctors in providing the best possible care to their patients and communities. Their goal is to help patients feel comfortable asking questions and having conversations with their family doctor, making the clinical office environment a ‘safe zone’.

Related to this, are questions such as:
1. What does a ‘safe zone’ mean to you?
2. What is important to you in your interactions with your family doctor?

To assist in the creation of a “safe zone” for all, you are invited to participate in the College of Family Physicians of Canada survey.
Please note that the survey closes on Monday, August 21st, 2017.