If you have not yet participated in this important conversation, you have until Monday, January 27, 2020 at 11:59 p.m. (PST) to do so. Share your thoughts here
The Neurosciences, Rehabilitation, and Vision Strategic Clinical Network (NRV SCN) is looking for patient and family representatives to respond to their patient engagement survey.
- The scope of this new SCN includes:
- neurological disorders (including Parkinson’s disease, Multiple Sclerosis (MS), epilepsy, dementia and Alzheimer’s disease), neuromuscular disorders (including spinal cord injury and Amyotrophic Lateral Sclerosis (ALS, or more commonly, Lou Gehrig’s disease)), and brain injuries;
- all forms of physical rehabilitation (which may include working with a physiotherapist, occupational therapist, speech pathologist, respiratory therapist, recreation therapist, audiologist, chiropractor, or other rehabilitation specialist); and
- all eye disorders (including cataract, glaucoma, macular degeneration, diabetic vision loss and other eye disorders).
- The combined results received from this survey will be reviewed by the NRV SCN Leadership Team, presented at an upcoming Core Committee meeting and used to help inform the priorities of this new SCN.
- If these clinical areas are applicable to you as a patient and family advisor, we invite you to complete this survey, or share the survey link and attached poster with others who may be interested in providing input.
- The survey is open from December 21st, 2018 until January 21st, 2019 and should take from 10-15 minutes to complete. It can be found here.
Are you a patient or family member who uses Internet and/or television services when in an Alberta Health Services’ facility? If so, AHS is inviting you to share your thoughts about the current television and wireless internet services being offered. The feedback you provide through this brief online survey will help to ensure a reliable and positive user experience – now and in the future.
To access the survey, please click the following link: Take Me to the Survey
The survey will be available until Saturday, December 15, 2018″ and all responses will be kept confidential.
The College of Family Physicians of Canada and the Centre for Effective Practice, in partnership with the Arthritis Alliance of Canada (AAC), developed the Osteoarthritis (OA) Tool A that helps family physicians work with patients who have suspected, new or established osteoarthritis of the hands, knees and/or hips. Related to this family physician tool, a new working group of the AAC is developing a patient version. To find out more about this patient tool and how you can get involved in its development, click here.
Do you live or work in the province of Alberta and are you:
- an older adult (65 years of age and over),
- a caregiver of an older adult (spouse; family member; friend; neighbour), or
- a clinician or health/social care provider (doctor; nurse; care aides; allied health provider; pharmacist; social worker) working with older adults?
If so, the Scientific Office of Alberta’s Seniors Health Strategic Clinical Network invites you to complete the following survey. By responding to the survey, you will be helping to determine the direction/priorities for future research and initiatives in the area of seniors’ health.
Your insights and suggestions are being sought as a means of improving Alberta’s Palliative and End-of-Life Care (PEOLC) website. By perusing the website and completing a short survey, you will be helping to ensure that the information provided is applicable, accessible and easy to understand. Please see below for additional details.
The provincial Palliative and End-of-Life Care (PEOLC) website has been available to all Albertans since May 2015. This provincial online resource allows Albertans and health care providers convenient access to trusted, evidence-based palliative and end-of-life care information that supports and enhances quality of life and quality of care. Creation of this website was one of the recommendations that came out of the PEOLC Alberta Provincial Framework (2014) and was supported by the Provincial Palliative and End-of-Life Care Innovations Steering Committee (PPAL/ EOL ISC). Implementing an evaluation plan for this website is a deliverable on the provincial PEOLC timelines and planning document for the 2017/18 fiscal year. We have developed an online feedback survey as part of the provincial PEOLC website evaluation plan.
We want to hear, for example, did you find information you were looking for, is the website easy to navigate, did you notice any gaps in the content? Actions requested:
- Please visit our provincial PEOLC website: https://myhealth.alberta.ca/palliative-care
- Please complete the brief online feedback survey by Oct. 5 by clicking on the following link: https://survey.albertahealthservices.ca/TakeSurvey.aspx?SurveyID=PEOLC_website
We will use this information to continue to enhance the website for all Albertans.
The College of Family Physicians of Canada (CFPC) and its key partners, Choosing Wisely Canada and the Canadian Cancer Action Network, are dedicated to supporting family doctors in providing the best possible care to their patients and communities. Their goal is to help patients feel comfortable asking questions and having conversations with their family doctor, making the clinical office environment a ‘safe zone’.
Related to this, are questions such as:
1. What does a ‘safe zone’ mean to you?
2. What is important to you in your interactions with your family doctor?
To assist in the creation of a “safe zone” for all, you are invited to participate in the College of Family Physicians of Canada survey.
Please note that the survey closes on Monday, August 21st, 2017.
If you are from Alberta, have lived experience with depression, and are interested in depression research, you may wish to participate in an online survey conducted by Alberta SPOR SUPPORT Unit, Patient Engagement Platform, Alberta Health Services and Canadian Depression Research and Innovation Network. By completing this survey, you will assist in determining the top 25-30 depression research questions to be used for an upcoming workshop. What questions matter most to you?
Click here to participate in the survey.
Hello Pts4Chg Community!
Over the last four months the materials for patients and families as partners and advisors have been refined a wee bit and are also now translated into French. Our small ‘collation of the willing’ (volunteer citizens, patient and family advisors and CFHI) also thought it important to also create a survey to help improve the materials upon use. I know that many of you provided feedback already (which I still have) and some of that has made it into the current version. Much of it has not though, as we needed to find a way to capture input that would likely also come in nationally. So please complete the two short surveys if you have time, so that your impressions on the info can be included when next edits are made, likely well into 2017.
If you are active on Twitter, here are some suggested hashtags for the overall Better Together campaign too, that this is part of, if you are tweeting this info out.
These two documents are designed to support the movement for Family Presence in healthcare.
1. The first document, Partner Tips, is intended to be used by patients and families at the point of care (e.g. at the bedside, in an office or clinic).
2. The second document, Conversation Tips, is intended to be a resource for patients and families in conversations with healthcare providers, or organizations, or communities.
Please feel free to download, copy, distribute and use these documents. You will need Adobe Reader on your device. You are welcome to adapt them to meet your local team’s needs.
These tips sheets are also available in French: http://www.fcass-cfhi.ca/WhatWeDo/better-together/resources
Want to have your say and Be part of the pilot for these documents!?
The volunteers with ‘IMAGINE CITIZENS Collaborating for Health’ would appreciate your feedback and comments about these two documents. Please click these links to complete the two surveys about each document:
Comments received will be reviewed by IMAGINE CITIZENS’ volunteers so that any significant edits can be incorporated. New versions will be available periodically, every six months or so, through the partner organizations.
Thank you for your help!
IMAGINE: Citizens Collaborating for Health & Member of Pts4Chg community
A member of the Patients 4 Change (Pts4Chg) community drew our attention to this important survey by posting the following. Thanks, Mike.
“This survey is being complied by Employment and Social Development regarding employment and people with unpredictable episodic conditions.
Click here or on the image above to go directly to the survey.
Please participate if you feel you qualify.”