As you may recall, June 6th was “What Matters to You?” day. Although these four words are simple in and of themselves, when a member of our Pts4Chg community introduced them to her homecare team, something special came about. See the results here. Way to go, Emma!
With so much emphasis in the healthcare field on experts and expertise, here’s a tweet and its responses that look at this question. The next time you were asked who the health expert is, what will your response be?
I use this statistic often in my talks. I asked a group of students last week "who are the health experts", they answered "doctors", I said "no, patients are – doctors are there to work with our expertise about our bodies to help us get better if/when we need them". https://t.co/jDraCf4qIk
— Julie Drury (@SolidFooting) February 10, 2019
National Volunteer Week is April 7-13, 2019! This week provides an opportunity to recognize the important role that volunteers play. Alberta Health Services is recognizing its over 14,400 volunteers. One of these individuals is also a member of our Pts4Chg community. Thanks for all you do, Gloria.
Gloria Wilkinson volunteers as a patient advisor with the Emergency SCN. Her perspective is considered equally with research and evidence. “It’s the only way to improve patient outcomes – the ones that matter to the patient,” says Gloria. pic.twitter.com/tkHBOS9hhF
— Alberta’s Strategic Clinical Networks (@ahs_scn) April 8, 2019
Paul, a member of our Patients for Change community, was recently on CBC’s “The Homestretch.” The focus of the discussion was #EndPJParalysis initiative. To learn what this initiative entails and the exciting results it is garnering, give Paul’s conversation a listen.
If you live in Saskatoon or area, this is something you will want to check out. Atlthough this true event is incredibly sad, Greg’s Story has the potential of bringing about some positive changes to healthcare. In doing so, the hope is to see fewer people falling through the cracks.
Click here for more information and to register.
Every so often, a tweet is encountered that is too good, and indeed too true, not to share. Given how quickly the number of retweets is increasing, other people feel the same way. With any luck, some of the people doing the retweeting are physicians.
Doctor: Don’t confuse your google search with my 6 years at medical school.
Patient: Don’t confuse the 1-hour lecture you had on my condition with my 10 years of living with it.
— 𝐂𝐡𝐫𝐨𝐧𝐢𝐜𝐚𝐥𝐥𝐲 𝐒𝐚𝐫𝐚𝐡 (@potsiegirlsarah) January 11, 2019
The Neurosciences, Rehabilitation, and Vision Strategic Clinical Network (NRV SCN) is looking for patient and family representatives to respond to their patient engagement survey.
- The scope of this new SCN includes:
- neurological disorders (including Parkinson’s disease, Multiple Sclerosis (MS), epilepsy, dementia and Alzheimer’s disease), neuromuscular disorders (including spinal cord injury and Amyotrophic Lateral Sclerosis (ALS, or more commonly, Lou Gehrig’s disease)), and brain injuries;
- all forms of physical rehabilitation (which may include working with a physiotherapist, occupational therapist, speech pathologist, respiratory therapist, recreation therapist, audiologist, chiropractor, or other rehabilitation specialist); and
- all eye disorders (including cataract, glaucoma, macular degeneration, diabetic vision loss and other eye disorders).
- The combined results received from this survey will be reviewed by the NRV SCN Leadership Team, presented at an upcoming Core Committee meeting and used to help inform the priorities of this new SCN.
- If these clinical areas are applicable to you as a patient and family advisor, we invite you to complete this survey, or share the survey link and attached poster with others who may be interested in providing input.
- The survey is open from December 21st, 2018 until January 21st, 2019 and should take from 10-15 minutes to complete. It can be found here.