Coffee…connections…comfort

As many people know, Alzheimer’s can be a very isolating journey for both patients and their caregivers. Memory Cafes help address these issues by providing people like Doug and Connie Moore with opportunities to connect with others over conversation and coffee.

To find Comfort Cafes in Canada, visit this website.

Cast Your Vote

Tweet Worth Sharing

Every so often, a tweet is encountered that is too good, and indeed too true, not to share. Given how quickly the number of retweets is increasing, other people feel the same way. With any luck, some of the people doing the retweeting are physicians.

What? Listen to Patients?

The importance of the patient is becoming more recognized in the healthcare sector. However, in many instances, including the pharmaceutical area, the patient is seen as simply something to talk to or to talk about.

According to a recent blog post by Mike Rea, this stance is limited and limiting in terms of who patients are and what they have to offer. As he asks in his post.

But, instead of talking to patients, what if we started listening? Not just to what they ‘need’, but what else they want? There are so many incredible groups out there now – potent patient groups (MMRF, MDA, Savvy Patients and more), who want to talk to us, who want to share. But, start to listen, and there will be a hundred hands that go up to stop you doing that.

Click here to read the full article.

Become a Patient Advocate

    Do you reside in the Edmonton area?
    Are you a caring, empathetic, compassionate individual who is looking for a way to make a difference in the lives of others?

If your answer to the above questions is “Yes,” the Open Arms Patient Advocacy society is looking for you. Click here to read more about this exciting opportunity.

Alberta Health Services – An Exciting Initiative

On Thursday, September 28th, Dr. Verna Yiu, Alberta Health Service (AHS) president and CEO, announced that the AHS board had approved a deal that will see the implementation of an advanced clinical information system throughout Alberta. This information system will serve as an information hub for all of AHS’s clinical care areas, which include hospitals, ambulatory clinics and continuing care centres. Currently, there are approximately, 1,300 information systems being used, all of which will be consolidated by this one system. Click here to read more about this initiative and what it will mean to patients, providers and healthcare as a whole.

Are You Dancing With Your Healthcare Provider?

In this video, Sarah KrΓΌg uses the analogy of the continuous give and take in the β€œTango” to illustrate the foundation of balanced partnership and connection that can exist between patient and physician. Unfortunately, this dance may not be occurring for some patients. As one member of the Patients 4 Change community stated, “To date, there are multiple songs playing at the same time, with each one having a different beat. Suffice it to say, my feet are very sore from being stepped on.” What kind of dance do you share with your healthcare providers?

Connecting Through Conversation

For many individuals, their goal is quality of life rather than medically extended longevity.  This is especially true for frail seniors.  Unfortunately, there can be a disconnect between what the senior desires, the actions taken and ultimately the healthcare provided.  As a means of addressing this disconnect, a new study is being conducted in Canada that aims to evaluate ways to improve care planning conversations.  As Dr. John You, project lead for the project states, “Advance care planning can have a significant impact on the patient experience and the family experience….They deserve to have their voices heard.”​  Click here to read more about this study.

Helping Oneself and Others

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In an online post, Sheila, a member of the Pts4Chg community, raises an important topic. How does one obtain assistance for oneself or others when it comes to health care? How does one

tactfully get help for yourself or a loved one, or even possibly someone we don’t know who is in the hospital and we see that he/she is not getting the care that the Dr. prescribed, such as meds being missed or denied, patient not being fed, etc. Sadly, only those who have a loved one who comes to visit, will get these issues fixed, but I have seen (too many times) meals delivered to people without a loved one there to feed them, which were just picked up and taken away when the dietitians came back to collect trays, no one to feed those who are the most sick and alone or help them get the care the Dr. prescribed. In my local hospital, those with visitors get the most care because then there are ‘witnesses’ to what did or did not happen. The ones who are alone are in a dangerously negligent position.

Any comments and suggestions relating to this topic are welcome.