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Tweet Worth Sharing

Every so often, a tweet is encountered that is too good, and indeed too true, not to share. Given how quickly the number of retweets is increasing, other people feel the same way. With any luck, some of the people doing the retweeting are physicians.

What? Listen to Patients?

The importance of the patient is becoming more recognized in the healthcare sector. However, in many instances, including the pharmaceutical area, the patient is seen as simply something to talk to or to talk about.

According to a recent blog post by Mike Rea, this stance is limited and limiting in terms of who patients are and what they have to offer. As he asks in his post.

But, instead of talking to patients, what if we started listening? Not just to what they ‘need’, but what else they want? There are so many incredible groups out there now – potent patient groups (MMRF, MDA, Savvy Patients and more), who want to talk to us, who want to share. But, start to listen, and there will be a hundred hands that go up to stop you doing that.

Click here to read the full article.

Become a Patient Advocate

    Do you reside in the Edmonton area?
    Are you a caring, empathetic, compassionate individual who is looking for a way to make a difference in the lives of others?

If your answer to the above questions is “Yes,” the Open Arms Patient Advocacy society is looking for you. Click here to read more about this exciting opportunity.

Alberta Health Services – An Exciting Initiative

On Thursday, September 28th, Dr. Verna Yiu, Alberta Health Service (AHS) president and CEO, announced that the AHS board had approved a deal that will see the implementation of an advanced clinical information system throughout Alberta. This information system will serve as an information hub for all of AHS’s clinical care areas, which include hospitals, ambulatory clinics and continuing care centres. Currently, there are approximately, 1,300 information systems being used, all of which will be consolidated by this one system. Click here to read more about this initiative and what it will mean to patients, providers and healthcare as a whole.

Are You Dancing With Your Healthcare Provider?

In this video, Sarah KrΓΌg uses the analogy of the continuous give and take in the β€œTango” to illustrate the foundation of balanced partnership and connection that can exist between patient and physician. Unfortunately, this dance may not be occurring for some patients. As one member of the Patients 4 Change community stated, “To date, there are multiple songs playing at the same time, with each one having a different beat. Suffice it to say, my feet are very sore from being stepped on.” What kind of dance do you share with your healthcare providers?

Connecting Through Conversation

For many individuals, their goal is quality of life rather than medically extended longevity.  This is especially true for frail seniors.  Unfortunately, there can be a disconnect between what the senior desires, the actions taken and ultimately the healthcare provided.  As a means of addressing this disconnect, a new study is being conducted in Canada that aims to evaluate ways to improve care planning conversations.  As Dr. John You, project lead for the project states, “Advance care planning can have a significant impact on the patient experience and the family experience….They deserve to have their voices heard.”​  Click here to read more about this study.

Helping Oneself and Others

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In an online post, Sheila, a member of the Pts4Chg community, raises an important topic. How does one obtain assistance for oneself or others when it comes to health care? How does one

tactfully get help for yourself or a loved one, or even possibly someone we don’t know who is in the hospital and we see that he/she is not getting the care that the Dr. prescribed, such as meds being missed or denied, patient not being fed, etc. Sadly, only those who have a loved one who comes to visit, will get these issues fixed, but I have seen (too many times) meals delivered to people without a loved one there to feed them, which were just picked up and taken away when the dietitians came back to collect trays, no one to feed those who are the most sick and alone or help them get the care the Dr. prescribed. In my local hospital, those with visitors get the most care because then there are ‘witnesses’ to what did or did not happen. The ones who are alone are in a dangerously negligent position.

Any comments and suggestions relating to this topic are welcome.

Curbside Consultations – Learning From and With Each Other

curbside consultationThe following was written and submitted by the Appropriate Use of Antipsychotics (AUA) project team.

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Long-term care (LTC) sites often wait months for expert consultation on very challenging responsive behaviours (or send the person to hospital). Last November we experimented by throwing out an open invitation to our LTC contacts to help out with a case study from North zone. There were many insightful suggestions from more than 30 callers (and no one said, β€œHave you thought of adding more drugs?”) We wrote the case study and ideas into a report and shared with the sites. Curbside consultations have grown in popularity with 30 – 50 callers (some representing groups of up to 10 staff members) at noon and 2 pm on the 3rd Wednesday of each month. This is helping residents and staff get more timely help, is educating and empowering staff to try new ideas, and has the potential to take some pressure off the very stretched mental health consultants.

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Click here to learn about the AUA team and their initiatives.