Are you interested in long-term care and its related issues? Would like to help create new standards for LTC homes? If you answered “Yes” to these questions, check out the following.
If you have not yet participated in this important conversation, you have until Monday, January 27, 2020 at 11:59 p.m. (PST) to do so. Share your thoughts here
Researchers at BC Cancer and SFU are conducting a new study exploring Canadian cancer survivors’ preferences for using (not using) cannabis. If you are a cancer survivor interested in participating, please visit https://cc-arcc.ca/cannabis-survivorship-study-2019/ for more information.
The Neurosciences, Rehabilitation, and Vision Strategic Clinical Network (NRV SCN) is looking for patient and family representatives to respond to their patient engagement survey.
- The scope of this new SCN includes:
- neurological disorders (including Parkinson’s disease, Multiple Sclerosis (MS), epilepsy, dementia and Alzheimer’s disease), neuromuscular disorders (including spinal cord injury and Amyotrophic Lateral Sclerosis (ALS, or more commonly, Lou Gehrig’s disease)), and brain injuries;
- all forms of physical rehabilitation (which may include working with a physiotherapist, occupational therapist, speech pathologist, respiratory therapist, recreation therapist, audiologist, chiropractor, or other rehabilitation specialist); and
- all eye disorders (including cataract, glaucoma, macular degeneration, diabetic vision loss and other eye disorders).
- The combined results received from this survey will be reviewed by the NRV SCN Leadership Team, presented at an upcoming Core Committee meeting and used to help inform the priorities of this new SCN.
- If these clinical areas are applicable to you as a patient and family advisor, we invite you to complete this survey, or share the survey link and attached poster with others who may be interested in providing input.
- The survey is open from December 21st, 2018 until January 21st, 2019 and should take from 10-15 minutes to complete. It can be found here.
If you said “Yes” to the above, click here for more details.
The importance of the patient is becoming more recognized in the healthcare sector. However, in many instances, including the pharmaceutical area, the patient is seen as simply something to talk to or to talk about.
According to a recent blog post by Mike Rea, this stance is limited and limiting in terms of who patients are and what they have to offer. As he asks in his post.
But, instead of talking to patients, what if we started listening? Not just to what they ‘need’, but what else they want? There are so many incredible groups out there now – potent patient groups (MMRF, MDA, Savvy Patients and more), who want to talk to us, who want to share. But, start to listen, and there will be a hundred hands that go up to stop you doing that.
Click here to read the full article.
If you or someone you know has been affected by pain, here is something you may find of interest.
A group of Albertans is developing the Alberta Pain Strategy. The purpose of the strategy is to:
- Outline a coordinated, provincial approach to addressing the complex issue of pain, starting with priorities;
- Capture the considerable amount of work already underway across the province related to pain and the use of opioids within a single strategy document;
- Build on successes and identify and focus on the remaining gaps.
To this end, the Alberta Pain Strategy team is seeking your thoughts, feedback and input. Please take a few minutes to read this short document and complete the online survey found here. The survey will be available until September 17, 2018.
What do you think the national drug plan for Canada should entail? The Government of Canada is seeking your input. Share your thoughts and ideas here.
Do you reside in the Edmonton area?
Are you a caring, empathetic, compassionate individual who is looking for a way to make a difference in the lives of others?
If your answer to the above questions is “Yes,” the Open Arms Patient Advocacy society is looking for you. Click here to read more about this exciting opportunity.