If you are interested in Patient-Oriented Research, why not join Beverley Pomeroy and Lisa Ridgeway for SPORCast? This bi-weekly podcast discusses the Standards for Patient-Oriented Research from the west coast of Canada. To listen to previous podcasts and more, including the conversation with Andre Picard, check out the SPORCast podcast page.
What are you doing on June 24th at 12:00 p.m. EST? Here is a webcast that you may find interesting.
“Patient Engagement: Looking Towards the New Normal
In this session, Dr. Monica Reed will explore the evolution of patient engagement from the seeds of measuring “satisfaction” and tracking “experience” to building true collaborative “engagement.” With an eye to the future coupled with the lessons we can take from our collective response to the COVID-19 pandemic, Dr. Reed leverages research and patient stories to identify key components for building Patient Engagement Culture moving forward. Key focus areas include:
Consumerism and diversity
Collaboration throughout the care ecosystem.”
Click on the link below to register for this webcast.
If you are free on Thursday, October 10th from 10 a.m.-11 a.m. MT, you may wish to attend this free webinar. Based on the description of the session, it is going to be time well spent. Register here.
Join patient partners and thought leaders in an engaging panel discussion on the value of patient and family partnerships. Learn first-hand about what works well for partnering with patients and families, what doesn’t and tips for collaborating on your system transformation and organizational quality improvement initiatives. This webinar features panelists who have a range of collaboration experience, including at organizational, health system and policy maker levels.
National Volunteer Week is April 7-13, 2019! This week provides an opportunity to recognize the important role that volunteers play. Alberta Health Services is recognizing its over 14,400 volunteers. One of these individuals is also a member of our Pts4Chg community. Thanks for all you do, Gloria.
Gloria Wilkinson volunteers as a patient advisor with the Emergency SCN. Her perspective is considered equally with research and evidence. “It’s the only way to improve patient outcomes – the ones that matter to the patient,” says Gloria. pic.twitter.com/tkHBOS9hhF
— Alberta’s Strategic Clinical Networks (@ahs_scn) April 8, 2019
The Neurosciences, Rehabilitation, and Vision Strategic Clinical Network (NRV SCN) is looking for patient and family representatives to respond to their patient engagement survey.
- The scope of this new SCN includes:
- neurological disorders (including Parkinson’s disease, Multiple Sclerosis (MS), epilepsy, dementia and Alzheimer’s disease), neuromuscular disorders (including spinal cord injury and Amyotrophic Lateral Sclerosis (ALS, or more commonly, Lou Gehrig’s disease)), and brain injuries;
- all forms of physical rehabilitation (which may include working with a physiotherapist, occupational therapist, speech pathologist, respiratory therapist, recreation therapist, audiologist, chiropractor, or other rehabilitation specialist); and
- all eye disorders (including cataract, glaucoma, macular degeneration, diabetic vision loss and other eye disorders).
- The combined results received from this survey will be reviewed by the NRV SCN Leadership Team, presented at an upcoming Core Committee meeting and used to help inform the priorities of this new SCN.
- If these clinical areas are applicable to you as a patient and family advisor, we invite you to complete this survey, or share the survey link and attached poster with others who may be interested in providing input.
- The survey is open from December 21st, 2018 until January 21st, 2019 and should take from 10-15 minutes to complete. It can be found here.
If you said “Yes” to the above, click here for more details.
The importance of the patient is becoming more recognized in the healthcare sector. However, in many instances, including the pharmaceutical area, the patient is seen as simply something to talk to or to talk about.
According to a recent blog post by Mike Rea, this stance is limited and limiting in terms of who patients are and what they have to offer. As he asks in his post.
But, instead of talking to patients, what if we started listening? Not just to what they ‘need’, but what else they want? There are so many incredible groups out there now – potent patient groups (MMRF, MDA, Savvy Patients and more), who want to talk to us, who want to share. But, start to listen, and there will be a hundred hands that go up to stop you doing that.
Click here to read the full article.