If you are interested in Patient-Oriented Research, why not join Beverley Pomeroy and Lisa Ridgeway for SPORCast? This bi-weekly podcast discusses the Standards for Patient-Oriented Research from the west coast of Canada. To listen to previous podcasts and more, including the conversation with Andre Picard, check out the SPORCast podcast page.
Do you have #SleepApnea? Share your experience to improve sleep apnea care in Canada in this UBC study, “Sleep Apnea Care in Canada: A Patient Survey” led by Dr. Nick Bansback: https://t.co/YLGvx3v58B pic.twitter.com/dQvOEhWYRN— Sachin R. Pendharkar (@srpendharkar) February 25, 2019
“Did you know that the time of day when you take your blood pressure medication might be important? The University of Alberta is leading BedMed, a Canada-wide blood pressure study, to answer important questions on treatment for high blood pressure. With your help, we can find out.” (Bedmed Facebook Page.)
Do you live or work in the province of Alberta and are you:
- an older adult (65 years of age and over),
- a caregiver of an older adult (spouse; family member; friend; neighbour), or
- a clinician or health/social care provider (doctor; nurse; care aides; allied health provider; pharmacist; social worker) working with older adults?
If so, the Scientific Office of Alberta’s Seniors Health Strategic Clinical Network invites you to complete the following survey. By responding to the survey, you will be helping to determine the direction/priorities for future research and initiatives in the area of seniors’ health.
Do you reside in Alberta? Are you interested in health research and patient engagement? If you answered “Yes” to both questions, you may wish to visit the Patient/Family Registry web page. In addition to discovering what is happening in the world of health research in Alberta, you can fill out an application form to get involved!
If you are from Alberta, have lived experience with depression, and are interested in depression research, you may wish to participate in an online survey conducted by Alberta SPOR SUPPORT Unit, Patient Engagement Platform, Alberta Health Services and Canadian Depression Research and Innovation Network. By completing this survey, you will assist in determining the top 25-30 depression research questions to be used for an upcoming workshop. What questions matter most to you?
Click here to participate in the survey.
Imagine being told that your twin daughters have a fatal illness of which there is no cure. This was the news that Chris and Hugh Hempel were given. However, rather than accept this news as the ultimate “truth,” they decided to do otherwise. Click here to find out what they did.
Living with a chronic condition can result in a number of challenges, including alienation, isolation and loneliness. Oft times, these factors can be more problematic than the condition itself.
Fortunately, there are disease-related organizations that can assist individuals with their illness as well as other the challenges, such as those noted above. Sadly, some of these organizations are forfeiting these services in pursuit of a “cure.” As such, the person with the disease is becoming secondary to the disease itself. Click here to read what individuals with MS are facing.
- 14-20 years of age?
- a person who suffered a concussion within the past two years?
- interested in concussion research?
- wanting to help others?
If so, you may find this YouTube video of interest.
Are you a parent or caregiver of a child who has experienced an inner ear infection or other related ear problem? Would you like to help develop educational resources for parents and caregivers concerning this topic? If so, a research team at the University of Alberta are looking for you. Click on the image below for more information.