Join Ali

What are you doing on June 20th from noon until 1 p.m. MT? Why not join Ali for what is sure to be an interesting webinar.

Long-term Care

What are you doing on Tuesday, May 28th at 11am MT? If you have an interest in long-term care and hearing the experiences of residents and family members, this is something that may be on interest to you. Details about the webinar can be found here.

Volunteer Week

National Volunteer Week is April 7-13, 2019! This week provides an opportunity to recognize the important role that volunteers play. Alberta Health Services is recognizing its over 14,400 volunteers. One of these individuals is also a member of our Pts4Chg community. Thanks for all you do, Gloria.

Sleep apnea?

If you suffer from sleep apnea and would like to share your experience, here is an opportunity to do so.

#EndPJParalysis On the Air

Paul, a member of our Patients for Change community, was recently on CBC’s “The Homestretch.” The focus of the discussion was #EndPJParalysis initiative. To learn what this initiative entails and the exciting results it is garnering, give Paul’s conversation a listen.

Cast Your Vote

Get Involved and Add Your Voice

The Neurosciences, Rehabilitation, and Vision Strategic Clinical Network (NRV SCN) is looking for patient and family representatives to respond to their patient engagement survey.

  • The scope of this new SCN includes:
      • neurological disorders (including Parkinson’s disease, Multiple Sclerosis (MS), epilepsy, dementia and Alzheimer’s disease), neuromuscular disorders (including spinal cord injury and Amyotrophic Lateral Sclerosis (ALS, or more commonly, Lou Gehrig’s disease)), and brain injuries;
      • all forms of physical rehabilitation (which may include working with a physiotherapist, occupational therapist, speech pathologist, respiratory therapist, recreation therapist, audiologist, chiropractor, or other rehabilitation specialist); and
      • all eye disorders (including cataract, glaucoma, macular degeneration, diabetic vision loss and other eye disorders).
  • The combined results received from this survey will be reviewed by the NRV SCN Leadership Team, presented at an upcoming Core Committee meeting and used to help inform the priorities of this new SCN.
  • If these clinical areas are applicable to you as a patient and family advisor, we invite you to complete this survey, or share the survey link and attached poster with others who may be interested in providing input.
  • The survey is open from December 21st, 2018 until January 21st, 2019 and should take from 10-15 minutes to complete. It can be found here.