Long-Term Care: Interest and Input

Are you interested in long-term care and its related issues? Would like to help create new standards for LTC homes? If you answered “Yes” to these questions, check out the following.

Home to Hospital to Home

If you are free on Friday, March 5th, 2021 from 11 a.m. – 12 p.m., (MT) why not join in the conversation about the home to hospital to home transition. What role can patients, family, and caregivers play in this transition?
https://www.eventbrite.ca/e/patient-and-family-hospital-transition-guideline-orientation-tickets-140172582969?keep_tld=1

Get Involved

Call for Participants

Have Your Say: What NEW research?

Are you a patient, family caregiver or healthcare provider who has experience with colorectal cancer? If so, why not share your ideas about NEW research that is needed to improve the lives of those living with and beyond a diagnosis of stage I-III colorectal cancer.

Who is eligible?

1. Stage I-III colorectal cancer patients.

2. Family members to patients diagnosed with state I-III colorectal cancer.

3. Healthcare providers who work with stage I-III colorectal cancer patients.

4. Community or support organization who works with state I-III colorectal cancer patients.

To participate, please visit the following website

Get Involved and Add Your Voice

The Neurosciences, Rehabilitation, and Vision Strategic Clinical Network (NRV SCN) is looking for patient and family representatives to respond to their patient engagement survey.

  • The scope of this new SCN includes:
      • neurological disorders (including Parkinson’s disease, Multiple Sclerosis (MS), epilepsy, dementia and Alzheimer’s disease), neuromuscular disorders (including spinal cord injury and Amyotrophic Lateral Sclerosis (ALS, or more commonly, Lou Gehrig’s disease)), and brain injuries;
      • all forms of physical rehabilitation (which may include working with a physiotherapist, occupational therapist, speech pathologist, respiratory therapist, recreation therapist, audiologist, chiropractor, or other rehabilitation specialist); and
      • all eye disorders (including cataract, glaucoma, macular degeneration, diabetic vision loss and other eye disorders).
  • The combined results received from this survey will be reviewed by the NRV SCN Leadership Team, presented at an upcoming Core Committee meeting and used to help inform the priorities of this new SCN.
  • If these clinical areas are applicable to you as a patient and family advisor, we invite you to complete this survey, or share the survey link and attached poster with others who may be interested in providing input.
  • The survey is open from December 21st, 2018 until January 21st, 2019 and should take from 10-15 minutes to complete. It can be found here.

What? Listen to Patients?

The importance of the patient is becoming more recognized in the healthcare sector. However, in many instances, including the pharmaceutical area, the patient is seen as simply something to talk to or to talk about.

According to a recent blog post by Mike Rea, this stance is limited and limiting in terms of who patients are and what they have to offer. As he asks in his post.

But, instead of talking to patients, what if we started listening? Not just to what they ‘need’, but what else they want? There are so many incredible groups out there now – potent patient groups (MMRF, MDA, Savvy Patients and more), who want to talk to us, who want to share. But, start to listen, and there will be a hundred hands that go up to stop you doing that.

Click here to read the full article.

Become a Patient Advocate

    Do you reside in the Edmonton area?
    Are you a caring, empathetic, compassionate individual who is looking for a way to make a difference in the lives of others?

If your answer to the above questions is “Yes,” the Open Arms Patient Advocacy society is looking for you. Click here to read more about this exciting opportunity.

New Opportunity

Are you over 20 yrs old? Do you have knee #osteoarthritis and experience pain most days of the month? Would you like to participate in knee osteoarthritis-related research? If you answered “Yes” to the above questions, here is an opportunity that you may find interesting. Click on the image below to read the document more easily.