Are you are resident of Alberta? Are you interested in helping to improve the healthcare system in Alberta? If so, why not become a member of the Health Quality Council of Alberta’s Patient and Family Advisor Committee. Click here to find out more.
Deadline to apply is March 18th, 2018.
Do you reside in Alberta? Are you interested in health research and patient engagement? If you answered “Yes” to both questions, you may wish to visit the Patient/Family Registry web page. In addition to discovering what is happening in the world of health research in Alberta, you can fill out an application form to get involved!
Delilah Saunders is critically ill and requires a liver transplant. Unfortunately, she has been deemed ineligible based on a past history of alcohol use. What are your thoughts about this decision and the associated protocol?
Click here to read the story.
What does a dream healthcare system look like to Laurie and Phil?
Thursday, November 30 – Patient Engagement Speaker Series
Helle Tees & Nicole Olivier will be presenting on patient engagement. If you are unable to attend this event in person, you can join the webinar. Click here for more information and to register.
The paramedics who were driving a dying woman to the hospital took a detour, and in so doing fulfilled her final wish.
“Sometimes it is not the drugs/training/skills – sometimes all you need is empathy to make a difference!”
Click here to read this heartwarming story.
Friday, November 17 – Change Day
Have you made your Change Day pledge yet? If not, click here to make your pledge?
Thursday, November 30 – Patient Engagement Speaker Series
Helle Tees & Nicole Olivier will be presenting on patient engagement. If you are unable to attend this event in person, you can join the webinar. Click here for more information and to register.
Do you or someone you know have glaucoma?
Did you or someone you know have an operation related to this disease?
If you answered “Yes.” to the above questions, you might be interested in the following opportunity to share your experience. Below are the details sent to Pts4Chg by CADTH.
CADTH is an independent, not-for-profit organization. CADTH reviews health technologies to help health care decision-makers, patients, health care professionals, health systems leaders, and policy-makers make well-informed decisions and improve the quality of health care services
CADTH researchers are currently planning a review of minimally invasive glaucoma surgery, as compared with other ways to manage glaucoma. They will be doing a comprehensive literature review of patient and caregiver perspectives on glaucoma surgery, in addition to assessing trials on clinical and cost effectiveness.
To help CADTH develop the plan for the research and provide CADTH researchers with the patient perspective into glaucoma and surgery, we would like to hear from individuals who have experience with glaucoma treatments (including surgery). We are looking for volunteers to review our plan and comment on whether we have captured all the important aspects of diagnosis and care from a patient’s perspective.
CADTH would send the volunteers the draft plan for the project, (it’s a 3-page document) and then we would schedule an informal telephone call to discuss the project and make sure we are covering all the issues that are important to patients. The summary notes from the call will be sent to you for your approval before it is shared with CADTH researchers. Your name will be removed from the summary and anything you wish to have removed from the summary notes will be deleted.
CADTH hopes conversations like these will benefit future patients who experience the same condition and that the results of the review and any recommendations that come from it will better reflect the needs of patients if patients like you are consulted in the development of our work.
Thank you for considering to speak to CADTH about your experiences with glaucoma. For more information, or to volunteer please contact: Tamara Rader TamaraR@cadth.ca
For many individuals, their goal is quality of life rather than medically extended longevity. This is especially true for frail seniors. Unfortunately, there can be a disconnect between what the senior desires, the actions taken and ultimately the healthcare provided. As a means of addressing this disconnect, a new study is being conducted in Canada that aims to evaluate ways to improve care planning conversations. As Dr. John You, project lead for the project states, “Advance care planning can have a significant impact on the patient experience and the family experience….They deserve to have their voices heard.” Click here to read more about this study.
Darlene, a member of our Pts4Chg community, was critical in making September – Pulmonary Fibrosis Awareness Month – in Edmonton! If you or someone you know suffers from pulmonary fibrosis, this free patient forum may be of interest to you. The event will be held on September 27th from 9:00 a.m. – 3:30: p.m. in Edmonton. Click here for more information.
Congratulations again, Darlene, on a job well done!
