Are you a patient, family caregiver or healthcare provider who has experience with colorectal cancer? If so, why not share your ideas about NEW research that is needed to improve the lives of those living with and beyond a diagnosis of stage I-III colorectal cancer.
Who is eligible?
1. Stage I-III colorectal cancer patients.
2. Family members to patients diagnosed with state I-III colorectal cancer.
3. Healthcare providers who work with stage I-III colorectal cancer patients.
4. Community or support organization who works with state I-III colorectal cancer patients.
To participate, please visit the following website
If you live in Saskatoon or area, this is something you will want to check out. Atlthough this true event is incredibly sad, Greg’s Story has the potential of bringing about some positive changes to healthcare. In doing so, the hope is to see fewer people falling through the cracks.
If you will be in Calgary or area on the evening of August 29/2018, this may be an event you want to attend. Given that dementia is becoming a reality for more people, the information provided is apt to be relevant to you or someone you know.
Thursday, November 30 – Patient Engagement Speaker Series
Helle Tees & Nicole Olivier will be presenting on patient engagement. If you are unable to attend this event in person, you can join the webinar. Click here for more information and to register.
Alberta Health Services’ Patient & Family Centred Care Week goes from November 6-10, 2017. A number of events are being held across the province to honour this week. Check out the program to see what is happening over the next five days. Here is hoping you will be able to participate in some of the activities.
Oft times, patients and families are hesitant to express their complaints and concerns relating to a particular care facility. The source of this hesitation can be from a deep sense of fear – the fear of retaliation. While in most cases no negative repercussions result when a complaint or concern is raised, such is not the case in a long-term care facility in Ontario, Canada.
According to a retired hospital nurse and daughter of a resident at the care facility, she is no longer able to stay in her mother’s room while her mother is being cared for by the staff. The reason for this restriction is because of the complaints the daughter made about the substandard care and dangerous hygiene practices she witnessed. “You complain and this is the price you pay.” What does this say about the facility’s view of family presence?
If you are from Alberta, have lived experience with depression, and are interested in depression research, you may wish to participate in an online survey conducted by Alberta SPOR SUPPORT Unit, Patient Engagement Platform, Alberta Health Services and Canadian Depression Research and Innovation Network. By completing this survey, you will assist in determining the top 25-30 depression research questions to be used for an upcoming workshop. What questions matter most to you?
Imagine being told that your twin daughters have a fatal illness of which there is no cure. This was the news that Chris and Hugh Hempel were given. However, rather than accept this news as the ultimate “truth,” they decided to do otherwise. Click here to find out what they did.
When talking about Family Presence, it is not uncommon for people to mention that the individuals whom they would want to be present with them in a hospital are not legally family members but are instead individuals who are “like family.” However, what does this terminology really mean?
While interviewing individuals for her latest book on friendship, Deborah Tannen frequently encountered the phrase, “like family.” As Tannen explains, “My friends are the sisters I was meant to have,” a woman told me. Another said that her friends are more precious than her sisters because they remember things from her past that her sisters don’t and can’t, since they weren’t there. And a man commented that he didn’t enjoy a particular friend’s company all that much, but it was beside the point: “He’s family.”
Through comments such as these and the descriptions and explanations people provided, Tannen garners an understanding of friendships, relationships and the concepts of family and “like family.”