Family Presence: Ming Ming

The following was submitted by Emma, a member of the Pts4Chg community. Thanks, Emma.

This is Jim. He spent 8 long weeks as an inpatient at the Red Deer Regional Hospital. Thankfully, the unit he was on allowed pet visitors. For Jim, this was patient centered care! Seeing his dog, Ming Ming, brought him such joy and the drive to do what he could to get home to her. Thank you Red Deer Regional Hospital for realizing pets are family too!

Get Involved!

  • Do you live in Alberta, Canada?
  • Do you have diabetes?
  • Have you been hospitalized lately?

If you answered “Yes” to the above questions, the Diabetes Obesity Nutrition Strategic Clinical Network would like to hear about your experience. To find out more, visit their website or contact them at DiabetesObesityNutrition.SCN@ahs.ca.

WHOLE Meet Up – Patient First Strategy

Will you be in or near Calgary on Friday, January 27th? Are you interested in healthcare and Alberta Health Services’ “Patient First Strategy”? If so, Mike, a member of the Pts4Chg community, is hosting an event that you may find of interest. Clicking on the image below will take you to Mike’s invitation.

What is QI?

The use of acronyms and abbreviations is common in many areas, including healthcare. One acronym often found in written material and heard in conversations is QI. However, what does QI mean? Health Quality Ontario created the following video that highlights the key points of the QI – Quality Improvement – as it relates to healthcare. More specifically, what does QI mean in healthcare and why should we care about it? If you have not seen the video, you may wish to do so.

Get Involved – Healthcare 101

There is an exciting initiative underway in Alberta. If you are interested in healthcare, you will definitely want to read Patty’s announcement below.

HEALTHCARE 101 PROJECT:
“The project will co-design with the public content relevant and meaningful to Alberta citizens to inform them on how the healthcare ecosystem works. The project will identify content and pilot test one foundational content by May 31st , 2016. We are doing this to help AB citizens experience the health care ecosystem in a positive way”

If you are interested to be involved or participate in this exciting opportunity, please see the invitation and respond to the contacts provided below.
Patty Wickson at patty.wickson@ahs.ca or (403)629-2139 – South of Edmonton
Rhonda Shea at Rhonda.Shea@hqca.ca or (780)974-3414 – North of Edmonton

Do Buildings Have Rights?

If you have been following the assisted dying discussion that is happening in Canada, you know that some patients have been denied medically assisted dying. The reason for this was not because the individuals failed to meet the necessary legal requirements, but because the hospitals/care facilities in which they found themselves would not provide the services to carry out the patients’ wishes.

In a recent article, André Picard argues that hospitals have no right to refuse a patient assisted dying. As he poignantly states:

It is reasonable for individual physicians and nurses to declare a conscientious objection and not participate in assisted death. But a hospital or nursing home has no such right. Publicly funded institutions cannot arbitrarily decide what services they will provide, nor should they be able to shunt dying patients around like sacks of rice.

Click here to read the full article.

Updates on Family Presence Work

Hello Pts4Chg Community!

Over the last four months the materials for patients and families as partners and advisors have been refined a wee bit and are also now translated into French. Our small ‘collation of the willing’ (volunteer citizens, patient and family advisors and CFHI) also thought it important to also create a survey to help improve the materials upon use. I know that many of you provided feedback already (which I still have) and some of that has made it into the current version. Much of it has not though, as we needed to find a way to capture input that would likely also come in nationally. So please complete the two short surveys if you have time, so that your impressions on the info can be included when next edits are made, likely well into 2017.

If you are active on Twitter, here are some suggested hashtags for the overall Better Together campaign too, that this is part of, if you are tweeting this info out.

  • #MoreThanAVisitor
  • #Cdnhealth
  • #shoulder2shoulder
  • #familypresence

These two documents are designed to support the movement for Family Presence in healthcare.

1. The first document, Partner Tips, is intended to be used by patients and families at the point of care (e.g. at the bedside, in an office or clinic).

2. The second document, Conversation Tips, is intended to be a resource for patients and families in conversations with healthcare providers, or organizations, or communities.

Please feel free to download, copy, distribute and use these documents. You will need Adobe Reader on your device. You are welcome to adapt them to meet your local team’s needs.

These tips sheets are also available in French: http://www.fcass-cfhi.ca/WhatWeDo/better-together/resources

Want to have your say and Be part of the pilot for these documents!?

The volunteers with ‘IMAGINE CITIZENS Collaborating for Health’ would appreciate your feedback and comments about these two documents. Please click these links to complete the two surveys about each document:

1. “Partner” Tips Survey and
2. “Conversation” Tips Survey.

Comments received will be reviewed by IMAGINE CITIZENS’ volunteers so that any significant edits can be incorporated. New versions will be available periodically, every six months or so, through the partner organizations.

Thank you for your help!

Troy Stooke
volunteer
IMAGINE: Citizens Collaborating for Health & Member of Pts4Chg community

Did You Miss It?

transformathon
The National Health Service in England hosted The People’s Transformation on Monday, November 28th. If you were unable to attend the event or missed some sessions, all is not lost. Recordings from the Transformathon will be accessible via the People’s Transformathon web page. They are sure to be worth watching, even if you attended the session live.

Have Your Say

A member of the Patients 4 Change (Pts4Chg) community drew our attention to this important survey by posting the following. Thanks, Mike.

“This survey is being complied by Employment and Social Development regarding employment and people with unpredictable episodic conditions.

episodic-disability-survey

Click here or on the image above to go directly to the survey.

Please participate if you feel you qualify.”