Even if you have not heard of “Game of Thrones,” you are apt to remember this special gift the cast gave to Claire Walton, an 88-year-old hospice patient.
https://www-m.cnn.com/2019/05/01/entertainment/game-of-thrones-hospice-trnd/
Tag Archives: patient experience
Who are the Experts?
With so much emphasis in the healthcare field on experts and expertise, here’s a tweet and its responses that look at this question. The next time you were asked who the health expert is, what will your response be?
I use this statistic often in my talks. I asked a group of students last week "who are the health experts", they answered "doctors", I said "no, patients are – doctors are there to work with our expertise about our bodies to help us get better if/when we need them". https://t.co/jDraCf4qIk
— Julie Drury (@SolidFooting) February 10, 2019
Unanswered questions
Lauren Richards’ death has left a number of questions. If you have not yet watched this video, you may wish to do so.
In addition, here is a related article that is worth reading.
#EndPJParalysis On the Air
Paul, a member of our Patients for Change community, was recently on CBC’s “The Homestretch.” The focus of the discussion was #EndPJParalysis initiative. To learn what this initiative entails and the exciting results it is garnering, give Paul’s conversation a listen.
Saskatoon -A must see
If you live in Saskatoon or area, this is something you will want to check out. Atlthough this true event is incredibly sad, Greg’s Story has the potential of bringing about some positive changes to healthcare. In doing so, the hope is to see fewer people falling through the cracks.
Click here for more information and to register.
Make the List
Which cities in Canada have the best hospitals? This was a question explored in a recent edition of “University Magazine.” Click here to find out if your city made the list and what constitutes the “best hospitals.”
Cast Your Vote
Tweet Worth Sharing
Every so often, a tweet is encountered that is too good, and indeed too true, not to share. Given how quickly the number of retweets is increasing, other people feel the same way. With any luck, some of the people doing the retweeting are physicians.
Doctor: Donβt confuse your google search with my 6 years at medical school.
Patient: Donβt confuse the 1-hour lecture you had on my condition with my 10 years of living with it.
— ππ‘π«π¨π§π’πππ₯π₯π² πππ«ππ‘ (@potsiegirlsarah) January 11, 2019
Get Involved and Add Your Voice
The Neurosciences, Rehabilitation, and Vision Strategic Clinical Network (NRV SCN) is looking for patient and family representatives to respond to their patient engagement survey.
- The scope of this new SCN includes:
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- neurological disorders (including Parkinsonβs disease, Multiple Sclerosis (MS), epilepsy, dementia and Alzheimer’s disease), neuromuscular disorders (including spinal cord injury and Amyotrophic Lateral Sclerosis (ALS, or more commonly, Lou Gehrig’s disease)), and brain injuries;
- all forms of physical rehabilitation (which may include working with a physiotherapist, occupational therapist, speech pathologist, respiratory therapist, recreation therapist, audiologist, chiropractor, or other rehabilitation specialist); and
- all eye disorders (including cataract, glaucoma, macular degeneration, diabetic vision loss and other eye disorders).
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- The combined results received from this survey will be reviewed by the NRV SCN Leadership Team, presented at an upcoming Core Committee meeting and used to help inform the priorities of this new SCN.
- If these clinical areas are applicable to you as a patient and family advisor, we invite you to complete this survey, or share the survey link and attached poster with others who may be interested in providing input.
- The survey is open from December 21st, 2018 until January 21st, 2019 and should take from 10-15 minutes to complete. It can be found here.
