Category Archives: Announcement

Looking to Volunteer?

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Patients Canada is a charitable organization that fosters collaboration between patients, family caregivers and the healthcare community so as to bring about change to Canada’s healthcare system. Currently, Patients Canada is looking for volunteer Patient and Family Advisors. Click here to apply to to become an advisor.

What Will You Do?

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“Patient organisations in Canada have engaged in Rare Disease Day since its first year in 2008, arranging gala dinners and exchanges between researchers and patients, as well as regional events across Canada.

The undisputed highlight of the 2015 event was the transformation of the iconic CN Tower with blue lighting to celebrate Rare Disease Day, as was done in 2014 as well. Elsewhere in Canada local communities got together for bake sales, dinners, and research forums.

The Canadian National Alliance, the Canadian Organization for Rare Disorders (CORD), serves as the voice for the estimated 1 in 12 Canadians affected by a rare disease. They can be contacted directly to help you find a patient organisation locally which may have more information about a specific rare disease or disorder.”  http://www.rarediseaseday.org/country/ca/canadae-disease-day)

The following pictures are of Melanie, an individual who suffers from the rare disease – gastroparesis.
(Pictures were submitted by DRDD2016eborah, February 28, 2016.)

 

As Melanie’s mother, Deborah, states, “That’s whatRDD20161 I have to look forward to every month for three days.”

Let’s Talk About Dementia

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ADDMApicIf you are going to be in Red Deer, Alberta on Thursday, February 25th, you may wish to attend a public forum on dementia entitled, “Dementia Care in the Community.”  This event will be taking place in the Cenovus Learning Commons at Red Deer College (100 College Boulevard) from 6:00-8:00 p.m. 

The evening will begin with a talk by Dr. Linda Lee, who is the director of the Memory Clinic at The Centre for Family Medicine FHT in Kitchener, Ontario.  Following Dr. Lee’s presentation, there will be time to network and view the posters that will be displayed around the room.  Click here to register for this free event.

Closing the Gap: Indigenous Health Innovations Forum

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In partnership with the Indigenous Peoples’ Health Research Centre, Johnson-Shoyama Graduate School of Public Policy, and the First Nations University of Canada, and The Conference Board of Canada, the Closing the Gap: Indigenous Health Innovations Forum will be taking place on May 25, 2016 at the Delta Regina in Regina, Saskatchewan.  “The Forum will explore key policies and activities that are improving the health and care experiences for Indigenous people in Saskatchewan, and will also serve as the qualitative first step in a Conference Board research study on this topic.”  Topics to be discussed include:

  • Community engagement to minimize health inequities;
  • Innovative models for improved service delivery;
  • Data on health status improvement;
  • Program delivery in communities;
  • Providing an indigenous lens to policy;
  • Integrated health solutions

Click here for more information, including speakers, conference fees etc.

Webinar – Family Presence

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Family Presence _Dec2015revJan8

 

As noted earlier, there is a Family Presence Campaign underway in Alberta. Part of this campaign sees the promotion of 24/7 visiting hours in Alberta’s care facilities.

The Canadian Foundation for Healthcare Improvement (CFHI) also has a campaign focusing on family presence. Related to this, there is a webinar on Tuesday, February 16th, 2016 at 10:00 a.m., MST, entitled, “Better Together: Canadian Case Studies.” This presentation will highlight the Ottawa Hospital, which adopted family presence policies in September 2015. The webinar is free and is apt to have some valuable information.

Looking for Something Fun to Do?

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FeelGood Calgary is holding a FREE Health and Wellness event at GoodLife Fitness on Saturday, February 20th from 1 – 4 p.m. Goodlife Fitness is located at 13226 Macleod Trail S.E. in Calgary.  In addition to guest speakers, demonstrations, and presentations, there are many prizes that you can win. To register for the event, please go to www.healthwellnessyyc.eventbrite.caGoodlife fitness

Reminder – Family Presence Coffee Chat

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reminderJust a reminder of the Family Presence Campaign coffee chat that will be held tomorrow, Saturday, January 23rd, at 10:30 a.m. at the Starbucks in Brentwood Village Mall in Calgary. (This Starbucks is located across the parking lot from the Bank of Montreal.  301 – 3630 Brentwood Rd. N.W.)  Come and join us for a coffee and hear more about the campaign and how you can get involved.  Hope to see you there!