— Patients 4 Change (@Pts4Chg) February 28, 2016
“Patient organisations in Canada have engaged in Rare Disease Day since its first year in 2008, arranging gala dinners and exchanges between researchers and patients, as well as regional events across Canada.
The undisputed highlight of the 2015 event was the transformation of the iconic CN Tower with blue lighting to celebrate Rare Disease Day, as was done in 2014 as well. Elsewhere in Canada local communities got together for bake sales, dinners, and research forums.
The Canadian National Alliance, the Canadian Organization for Rare Disorders (CORD), serves as the voice for the estimated 1 in 12 Canadians affected by a rare disease. They can be contacted directly to help you find a patient organisation locally which may have more information about a specific rare disease or disorder.” http://www.rarediseaseday.org/country/ca/canadae-disease-day)
The following pictures are of Melanie, an individual who suffers from the rare disease – gastroparesis.
(Pictures were submitted by Deborah, February 28, 2016.)