Protocol prohibits transplant

Delilah Saunders is critically ill and requires a liver transplant. Unfortunately, she has been deemed ineligible based on a past history of alcohol use. What are your thoughts about this decision and the associated protocol?

Click here to read the story.

What You Doing on Thursday – Nov 29th?

Thursday, November 30 – Patient Engagement Speaker Series
Helle Tees & Nicole Olivier will be presenting on patient engagement. If you are unable to attend this event in person, you can join the webinar. Click here for more information and to register.

Reminder: Upcoming Events

Friday, November 17 – Change Day
Have you made your Change Day pledge yet? If not, click here to make your pledge?

Thursday, November 30 – Patient Engagement Speaker Series
Helle Tees & Nicole Olivier will be presenting on patient engagement. If you are unable to attend this event in person, you can join the webinar. Click here for more information and to register.

A Day in the Life

As part of Patient & Family Centred Care Week, which goes from November 6th-10th, 2017 and Change Day, which occurs on November 17th, 2017, the Calgary Zone of Alberta Health Services has initiated a “Lived Experience” activity. For one day, healthcare professionals will walk in the shoes of a patient as a way of gaining greater insight, understanding, and compassion for what it is their patients live each and every day.

Click on the image below to see what shoes Paul and some other healthcare professionals will be walking in.

Transfer of Care Experience?

Are you a patient or family member who has experienced what it is like to go from the adult Intensive Care Unit to the Ward of a hospital? If so, the Department of Critical Care Medicine at the University of Calgary is inviting you to join in a facilitated session to discuss the transfer of care process. This session will be held on November 2, 2017; 10:00 a.m. to 3:00 p.m. in Room TRW2D39; Teaching, Research and Wellness Building, Foothills Campus, University of Calgary; Calgary, Alberta. Click here to read more.

Are You Dancing With Your Healthcare Provider?

In this video, Sarah Krüg uses the analogy of the continuous give and take in the “Tango” to illustrate the foundation of balanced partnership and connection that can exist between patient and physician. Unfortunately, this dance may not be occurring for some patients. As one member of the Patients 4 Change community stated, “To date, there are multiple songs playing at the same time, with each one having a different beat. Suffice it to say, my feet are very sore from being stepped on.” What kind of dance do you share with your healthcare providers?

Share Your Experience


Do you or someone you know have glaucoma?
Did you or someone you know have an operation related to this disease?
If you answered “Yes.” to the above questions, you might be interested in the following opportunity to share your experience. Below are the details sent to Pts4Chg by CADTH.

CADTH is an independent, not-for-profit organization. CADTH reviews health technologies to help health care decision-makers, patients, health care professionals, health systems leaders, and policy-makers make well-informed decisions and improve the quality of health care services

CADTH researchers are currently planning a review of minimally invasive glaucoma surgery, as compared with other ways to manage glaucoma. They will be doing a comprehensive literature review of patient and caregiver perspectives on glaucoma surgery, in addition to assessing trials on clinical and cost effectiveness.

To help CADTH develop the plan for the research and provide CADTH researchers with the patient perspective into glaucoma and surgery, we would like to hear from individuals who have experience with glaucoma treatments (including surgery). We are looking for volunteers to review our plan and comment on whether we have captured all the important aspects of diagnosis and care from a patient’s perspective.
CADTH would send the volunteers the draft plan for the project, (it’s a 3-page document) and then we would schedule an informal telephone call to discuss the project and make sure we are covering all the issues that are important to patients. The summary notes from the call will be sent to you for your approval before it is shared with CADTH researchers. Your name will be removed from the summary and anything you wish to have removed from the summary notes will be deleted.

CADTH hopes conversations like these will benefit future patients who experience the same condition and that the results of the review and any recommendations that come from it will better reflect the needs of patients if patients like you are consulted in the development of our work.

Thank you for considering to speak to CADTH about your experiences with glaucoma. For more information, or to volunteer please contact: Tamara Rader TamaraR@cadth.ca

September is Pulmonary Fibrosis Month


Darlene, a member of our Pts4Chg community, was critical in making September – Pulmonary Fibrosis Awareness Month – in Edmonton! If you or someone you know suffers from pulmonary fibrosis, this free patient forum may be of interest to you. The event will be held on September 27th from 9:00 a.m. – 3:30: p.m. in Edmonton. Click here for more information.

Congratulations again, Darlene, on a job well done!

Your Input is Wanted

Are you…

  • Interested in improving the patient experience in emergency departments?;
  • Available on Tuesday, August 29th from 9:00 a.m. – 12 p.m.?
  • Iin the Edmonton area that day?.

If you answered “Yes” to the above questions, the Emergency Strategic Clinical Network and the Grey Nuns Community Hospital are looking for you. Click here for more details.