Pts4Chg Fishbowl – Thanks and Themes

On October 17th, Patients 4 Change (Pts4Chg) hosted a Fishbowl event as part of Alberta Health Services’ Patient & Family Centred Care week. The fishbowl format was chosen as it encourages a genuine dialogue and conversation, rather than a panel-like, prepared presentation. Eight individuals volunteered to be fish in the bowl and were the key conversationalists for the event. Members of the audience “jumped” in and out of the bowl to ask questions and make comments. 

Although fishbowls are typically held in person, the Pts4Chg fishbowl was held virtually. Unfortunately, technical problems that started in the morning and continued throughout the day saw our virtual fishbowl experiencing a few unexpected challenges. Nevertheless, despite the “rough waters” that were present, a very lively, open, and honest discussion ensued around the following questions:

1. What does partnering with patients and families look like to you?
2. How do you build rapport and grow relationships in health care that make for effective and equitable partnerships?
3. What are some of the current barriers to partnership? How could these barriers be removed or minimized?

Click here to find out what themes arose from the Pts4Chg fishbowl. (Thanks, Sandi, for helping to create this document.)

Based on the feedback received, the Pts4Chg fishbowl was a very successful and worthwhile event. This, however, would not have been possible without an active audience, and our amazing school of fish – Debbie, Mike, Aaron, Sandi, Philip, Terry, Jane and Kristina. Thanks so much!

Richard and Tracy

Thank You

Thank you to everyone who joined us in the Fishbowl last night. What a great time and and an interesting conversation! Special thanks to our fish – Debbie, Mike, Aaron, Sandi, Philip, Terry, Jane and Kristina. You were super! Thanks also to Richard. Your efforts in bringing this event about were not overlooked and were much appreciated. Thanks so much! Tracyweb-fish-thank-you-front

Suicide Prevention Workshop

Straight Talk is a half-day workshop focusing on preventing suicide in youth. It is designed for parents, family and friends, and anyone who works with youth ranging in age from 12 to 24 years old.

Date: September 13, 2016
Location: Kahanoff Centre, 2nd Floor – 105 12 Avenue SE, Calgary, Alberta
Time: 8:30 a.m. – 12:30 p.m.
Fee: Free
Contact: Candice Hickman, registrar@suicideinfo.ca or phone: 403-245-3900

Click here for more information about the workshop and to register online.

Free Epilepsy Webinar – May 11th

Are you are interested in epilepsy?  Do you want to know how epilepsy is now defined? Would you like to learn how to recognize what constitutes drug-resistant epilepsy, develop an approach to managing unprovoked first seizure in adults, and how to treat status epilepticus in children and in adults?  Are you a rural physician or other health care provider? If you answered, “Yes” to the above questions, then this free webinar will be of interest to you.

CURIOS New Epilepsy Guidelines
Date & Time: May 11, 2016 | 6:30 pm – 7:30 pm
Location: Webinar Access
Speaker:Nathalie Jette MD, MSc, FRCPC

Click here for flyer.
Click here to register online.

Dementia Care Conference

If you will be in the Lethbridge area on May 27th, here is an event you may be interested in attending.

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Beulah Salt Seniors Conference – Dementia Care
May 27, 2016, 7:30 a.m. – 4:00 p.m.
University of Lethbridge,

Student Union Ballroom A & B
Registration is $10.00 
(Deadline to register is May 13, 2016.)

The sessions include:

Searching for Closeness – Why Feelings Matter Most in Dementia Care
Presenter: Dr. David Sheard, CEO / Founder Dementia Care Matters

Interventions to Change Practice in Long Term Care Facilities
Presenter: Dr. Sienna Caspar, Assistant Professor, Therapeutic Recreation Program, Faculty of Health Sciences, U of L

Moral Distress
Presenter: Dr. Shannon Spenceley, Assistant Professor, Faculty of Health Sciences, U of L

Understanding the Role of the Male Caregiver
Presenter: Mr. Ryan Waldorf, MHSc (Nursing), RN; Instructor, Nursing, Faculty of Health Sciences, U of L

Learning How to be a Butterfly – The Butterfly Household Model of Care
Presenter: Dr. David Sheard

Click here for the Conference Registration Form.

POR Training Program 4: Qualitative Methods & POR

If you are interested in Patient Oriented Research (POR), this might be something you want to attend.

The Patient-Oriented Research Training Program provides participants with a foundational understanding of Patient-Oriented Research (POR). It is intended to help equip research team members with the skills and knowledge necessary to engage meaningfully in projects that involve a POR approach.  The Training Program is open to anyone who is collaborating, or planning to collaborate, in POR. It is intended for graduate students, trainees, community and academic researchers, patients and family members, health care professionals, decision-makers, and industry and community stakeholders who are interested in learning about, or contributing to, POR in Alberta.  

Click here to continue reading.

Outgrowing Childhood Trauma?

[Nadine Burke Harris] believes that regarding childhood trauma as a medical issue helps her to treat more effectively the symptoms of patients. Moreover, she believes, this approach, when applied to a large population, might help alleviate the broader dysfunction that plagues poor neighborhoods. — The New Yorker

According to Nadine Burke Harris, childhood trauma is not something a one gets over or grows out of. Instead, its effect can last a lifetime and cause health issues including heart disease and lung cancer. Click here to watch Burke Harris’ TEDMED presentation, “How childhood trauma affects health across a lifetime.”

“Patient Included”…or Not

It is becoming more common for patients to be invited to medical-related conferences. However, in an open letter to “Patients Included” conferences, Carolyn Thomas points out why many of these invitations are problematic.

Dear medical conference organizers,

Thank you so much for inviting me to participate in your conference later this year. It is a real honour to be asked to help represent the patient voice at your prestigious event. I know that inviting patients alongside your impressive international roster of well-respected physicians is new to you. So congratulations on embracing the increasingly important “Patients Included” movement sweeping through medical conferences.

But as I once wrote to patient blogger (and conference speaker) Carly Medosch:

“I can no longer afford to be ‘honoured’ by any more medical conference invitations.”

Allow me to explain:

Click here to continue reading Thomas’ letter.

Let’s Talk About Dementia

ADDMApicIf you are going to be in Red Deer, Alberta on Thursday, February 25th, you may wish to attend a public forum on dementia entitled, “Dementia Care in the Community.”  This event will be taking place in the Cenovus Learning Commons at Red Deer College (100 College Boulevard) from 6:00-8:00 p.m. 

The evening will begin with a talk by Dr. Linda Lee, who is the director of the Memory Clinic at The Centre for Family Medicine FHT in Kitchener, Ontario.  Following Dr. Lee’s presentation, there will be time to network and view the posters that will be displayed around the room.  Click here to register for this free event.

Walk with Me

Walk with Me 2016 will be held in Edmonton, Alberta, on March 10-11, 2016.  The focus of this conference is to bring about a culture change in how we view aging in our society. In addition to providing ideas, practical strategies and helpful tips relating to daily life and living, participants will have the opportunity to explore and experience aging in different ways.  The conference will include “powerful keynotes, interactive concurrent sessions, panel presentations, discussion circles and creative expressions (e.g., performing arts, photography, art installations).”   Click here for further information.