(The following was submitted by patient/family advisor – @aircalgary)
Great conversation about:
- There are no right words (e.g., patient, resident, client). Person-centred care is the point. Family is whoever the person decides he/she wants to participate (or NOT) in his/her care.
- Patient and Family Advisor wisdom shared- always have more than one patient and family Advisor on a quality improvement committee. Sometimes groups just going for numbers of advisors, or stories for tokenism. Look for genuine commitment on part of the committee to really listen and include to patient experience as an equal voice of truth in decision making.
- Some committees are doing great, other staff members need orientation first before they include patient and family Advisors in their work.
- Imagine Citizens is doing amazing work to ensure a clear citizen voice is available to shape healthcare improvements in patient and family centred care.
Oft times there is a clear difference between wants and needs. However, this distinction can be far less clear in some situations – such as in healthcare. According to Brian W. Rotenberg, “Doctors need to start openly and directly considering the concept of medical necessity when talking with patients about tests or procedures. Patients, in turn, need to keep in mind that their healthcare is not “free,” and that many of their health-related complaints likely represent wants, rather than needs.” Read the full article here.
The Family Presence Campaign officially began on January 7th, which saw a patient/family advisor, founder of this initiative, meeting with individuals in Edmonton. Below are three tweets that highlight some aspects of launch day.
The Family Presence Initiative, a project associated with ChangeDay AB. is ahead of schedule. If all goes as planned, the official launch date will be in early January 2016. In addition to having an online presence, an individual involved with this initiative, will be holding coffee meetings throughout Alberta. Click here to view the online campaign.