Get Involved – Health Research Opportunity

Do you reside in Alberta? Are you interested in health research and patient engagement? If you answered “Yes” to both questions, you may wish to visit the Patient/Family Registry web page. In addition to discovering what is happening in the world of health research in Alberta, you can fill out an application form to get involved!

What You Doing on Thursday – Nov 29th?

Thursday, November 30 – Patient Engagement Speaker Series
Helle Tees & Nicole Olivier will be presenting on patient engagement. If you are unable to attend this event in person, you can join the webinar. Click here for more information and to register.

Alberta Health Services – An Exciting Initiative

On Thursday, September 28th, Dr. Verna Yiu, Alberta Health Service (AHS) president and CEO, announced that the AHS board had approved a deal that will see the implementation of an advanced clinical information system throughout Alberta. This information system will serve as an information hub for all of AHS’s clinical care areas, which include hospitals, ambulatory clinics and continuing care centres. Currently, there are approximately, 1,300 information systems being used, all of which will be consolidated by this one system. Click here to read more about this initiative and what it will mean to patients, providers and healthcare as a whole.

Patient First?

“Patient first” is a term that is often used in the health-care sector. However, are we first and foremost patients? Is that how we see ourselves?

According to Dr. Jordan Asher, he sees his patients differently. To him, he sees them as people first. “[I]n order for you to have a better health status, which includes healthcare, I need to think about you as a human being…We don’t look at people as diabetics; we look at them as people that have a bunch of life issues that happen to have diabetes.” How does this philosophy influence the manner in which Dr. Asher works with his patients? Click here to find out.

Tips for Patient Engagement

alexanderrathsThe term “patient engagement” is one that is frequently stated and bantered about. However, what does it really mean? Why is such engagement important? How can patient engagement be fostered and promoted, so it becomes more than a theoretical idea or ideology and something that is real and realized?

According to Dr. Anhalt, an individual who treats pediatric patients with type 1 diabetes and chief medical officer for T1D Exchange, patient engagement is critical. Among other things, it sees patients becoming engaged in their own care, resulting in living healthier lives and experiencing better outcomes. Based on this understanding, Dr. Anhalt discusses tips for successful patient engagement. They include: educating patient and families, encouraging patients to engage in their health outside of a doctor’s office and using all patient interactions as opportunities for learning. To read the full article, click here.

Patient Voices Network – Volunteer and Make a Difference

Do you live in British Columbia? Do you want to make a positive difference to the province’s health care system? If so, you may wish to explore the Patient Voices Network. Ernie Hamm is an individual who chose to do just that and is very happy that he did.

Ernie Hamm loves to lend a helping hand and he’s been thoroughly enjoying donating his time with the Patient Voices Network (PVN). The Osoyoos senior, 77, has been volunteering with PVN for more than four years and has loved every minute of it. “I just volunteer in any area where they need help,” he said. … Click here to continue.

Clinical Trials – To Participate or Not

Clinical trials are becoming more popular and as such, the demand for participants is increasing. Unfortunately, oft times patients who are being asked to participate or are considering joining are unclear about the nature of the study and what their involvement would entail. This, in turn, makes deciding whether or not to get involved in the study more difficult.

To address this issue, The Center for Information & Study on Clinical Reseach Participation has a number of questions on its website that may be of assistance to individuals contemplating clinical trial involvement. Here are five of the questions they list.
1. What is the main purpose of this study?
2. Does the study involve a placebo or a treatment that is already on the market?
3. How will the treatment be given to me?
4. How long is the study going to last and what will I be asked to do as a participant?
5. What has been learned about the study treatment and are any study results published?

To reading the list, click here. What, if any, questions would you add to this list?

Our Presentation

Jess and DebAs mentioned in the previous post, Pts4Chg was presenting today at the International Institute for Patient and Family Centred Care (IPFCC) conference in New York City. The presentation entitled, “Bridging the Disconnected: Empowering Advisors for Change Through Social Media,” was well attended and well received, both at the conference and in the Twittersphere. According to participants and presenters, the level of enthusiasm, energy and engagement was high.

Below are just a few of the tweets sent out during the session.

Thank you to everyone who attended the session in person or virtually. Special thanks go to Kirsten, Holly, Shannon and Jamie. Your efforts made live tweeting the event possible. Thanks so much.