Feed the Elephant

In an earlier post, readers were invited to share any ideas they had concerning potential topics for the upcoming 2017 Quality Summit. Karla W. was one person who accepted this open invitation. Below is what she wrote.

“Over the past several years of [my] experience as a patient representative/advisor, the issue of remuneration for time spent as a “volunteer” has surfaced [during] discussions at the tables. Nationally, and provincially, it varies greatly (from zero – up) how organizations acknowledge patient advisors, as well [as how] different people on the same committees are acknowledged differently. I would like to encourage a discussion on this topic.”

Why not be like Karla and “feed” the elephant?

Quality Summit 2017 – Elephant in the Room

Planning for the upcoming Quality Summit 2017 is underway. To this end, members of the Patients 4 Change (Pts4Chg) community were asked to provide their thoughts on what they would like to see at the summit. During a recent Pts4Chg community telephone chat, which focused on the Quality Summit 2017, one of the key ideas raised was the need to talk about the “elephant in the room,” as it relates to partnering with Patient/Family Advisors.

While it is true that these topics may be difficult to raise and cause some angst and discomfort when discussed, by pretending that such issues do not exist and hence failing to address the elephant in the room, genuine collaboration and engagement with advisors is not apt to occur.

Below are some of parts of the elephant the Pts4Chg community identified.

  • Devaluing advisors
  • Fear of including advisors
  • Wasting advisors’ time energy and experience
  • Exploitation versus engagement – When does inclusion become exploitation?
  • Partnership versus Tokenism
  • Ignoring advisors

Click here to read more from the recent Pts4Chg conversation. If you have any ideas, suggestions or comments pertaining the following four areas, you are welcome to reply as a response to this post.

  1. What advisor-related topics would you like to see included at the Summit?
  2. What speakers would you like to have as part of the advisors’ sessions?
  3. What format would you like to see for the advisors sessions? For example, formal presentation, workshops, breakout session, etc.?
  4. Other Comments

You Are Invited…

Pts4Chg is presenting at the International Institute for Patient and Family Centred Care (IPFCC) conference that is occurring from July 25-27th. As part of the presentation, a Twitter exchange will be taking place. Please consider joining us in the Twittersphere to converse with conference delegates, share ideas and have fun. IPFCC2016

Date: Tuesday, July 26, 2016
Time: 11:15 a.m. EST
Location: In the Twittersphere at ‪#‎Pts4ChgNYC

Looking to Volunteer?

Patients Canada is a charitable organization that fosters collaboration between patients, family caregivers and the healthcare community so as to bring about change to Canada’s healthcare system. Currently, Patients Canada is looking for volunteer Patient and Family Advisors. Click here to apply to to become an advisor.