Your Input is Wanted

Are you…

  • Interested in improving the patient experience in emergency departments?;
  • Available on Tuesday, August 29th from 9:00 a.m. – 12 p.m.?
  • Iin the Edmonton area that day?.

If you answered “Yes” to the above questions, the Emergency Strategic Clinical Network and the Grey Nuns Community Hospital are looking for you. Click here for more details.

Feedback Please

A small group of patient/famiy advisors and Alberta Health Services staff have been working to create an app that could easily capture data regarding the patient/family experience at the end of a clinic/hospital visit. This app would allow programs/areas to obtain information about the patient’s/family’s experience immediately after the care was received. All feedback, including Ideas and suggestions of how the program/area could be more patient and family centred, would be provided anonymously. Having this information readily available would allow managers and healthcare teams to make improvements in the care provided by their program/area.

A prototype of this app has been developed, which will be tested in two clinics. However, before doing so, your assistance is being sought via the completion of a short survey relating to the prototype. If you could take a few minutes to complete this survey, it would be greatly appreciated. Thanks in advance for your help! Please note that the survey is NOT limited to family/patient advisors.

Get Involved

What are you doing on Wednesday, July 26th,2017 from 10 a.m. – 12 p.m.? Will you be in or near Calgary? If so, the Emergency Strategic Clinical Network is looking for individuals to provide input, feedback and suggestions on a document they are creating about Iron Deficiency Anemia. You need not be an advisor nor a person who suffers from this ailment to participate in this focus-group discussion. Click here to see attachment below for further information.

Calling All Albertans

Do you live in Alberta?
Would you like to see improvement in Alberta’s healthcare system?

If you answered “Yes” to the above questions, IMAGINE Citizens Collaborating for Health is looking for you. In particular, IMAGINE is seeking 25 Albertans to participate in a province-wide conversation that will focus on improving Alberta’s primary health care system. Deadline for applications is June 19th. Click here to find out more.

And We’re Off!

Today, Tuesday, June 6th, is the day for you to ask and answer the following question.
“What Matters to You?”
Join in the discussion on Twitter, using the hashtag #wmty17 and on the public blog found at

Call for Participants!

The Patient and Community Engagement Research (PaCER) Program at the University of Calgary is seeking participants for a project they are working on with the Cancer Strategic Clinical Network. This project will focus on breast health education supports available to patients. If you or someone you know underwent breast cancer surgery within the last two years, this is a project you may find of interest. Click here for more information.

Advocate for Persons with Disabilities

Recently, Sandra Jansen, MLA from Calgary North West, proposed a private member’s bill. This bill, if passed, would see the creation of an Advocate for Persons with Disabilities. The Advocate would report to and advise the Minister of Community and Social Services and be mandated to:

  • identify and study issues of concern to persons with disabilities;
  • review programs and policies affecting persons with disabilities;
  • participate in processes in which decisions are made about persons with disabilities;
  • promote the rights, interests and well-being of person with disabilities through public education;
  • provide information and advice to the Government with respect to any matter relating to the rights, interests and well-being of person with disabilities; and
  • assist individuals who are having difficulty accessing services for persons with disabilities and related programs, including directing them to an appropriate resource, person or organization that may be able to assist them.”

Click here to read more about the proposed bill and provide your response.

***Thanks to Sandi, a member of the Pts4Chg community, for bringing this to our attention.***

Get Involved!

  • Do you live in Alberta, Canada?
  • Do you have diabetes?
  • Have you been hospitalized lately?

If you answered “Yes” to the above questions, the Diabetes Obesity Nutrition Strategic Clinical Network would like to hear about your experience. To find out more, visit their website or contact them at

Updates on Family Presence Work

Hello Pts4Chg Community!

Over the last four months the materials for patients and families as partners and advisors have been refined a wee bit and are also now translated into French. Our small ‘collation of the willing’ (volunteer citizens, patient and family advisors and CFHI) also thought it important to also create a survey to help improve the materials upon use. I know that many of you provided feedback already (which I still have) and some of that has made it into the current version. Much of it has not though, as we needed to find a way to capture input that would likely also come in nationally. So please complete the two short surveys if you have time, so that your impressions on the info can be included when next edits are made, likely well into 2017.

If you are active on Twitter, here are some suggested hashtags for the overall Better Together campaign too, that this is part of, if you are tweeting this info out.

  • #MoreThanAVisitor
  • #Cdnhealth
  • #shoulder2shoulder
  • #familypresence

These two documents are designed to support the movement for Family Presence in healthcare.

1. The first document, Partner Tips, is intended to be used by patients and families at the point of care (e.g. at the bedside, in an office or clinic).

2. The second document, Conversation Tips, is intended to be a resource for patients and families in conversations with healthcare providers, or organizations, or communities.

Please feel free to download, copy, distribute and use these documents. You will need Adobe Reader on your device. You are welcome to adapt them to meet your local team’s needs.

These tips sheets are also available in French:

Want to have your say and Be part of the pilot for these documents!?

The volunteers with ‘IMAGINE CITIZENS Collaborating for Health’ would appreciate your feedback and comments about these two documents. Please click these links to complete the two surveys about each document:

1. “Partner” Tips Survey and
2. “Conversation” Tips Survey.

Comments received will be reviewed by IMAGINE CITIZENS’ volunteers so that any significant edits can be incorporated. New versions will be available periodically, every six months or so, through the partner organizations.

Thank you for your help!

Troy Stooke
IMAGINE: Citizens Collaborating for Health & Member of Pts4Chg community