Category Archives: Research Participants

What Questions Matter Most to You?

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If you are from Alberta, have lived experience with depression, and are interested in depression research, you may wish to participate in an online survey conducted by Alberta SPOR SUPPORT Unit, Patient Engagement Platform, Alberta Health Services and Canadian Depression Research and Innovation Network. By completing this survey, you will assist in determining the top 25-30 depression research questions to be used for an upcoming workshop. What questions matter most to you?

Click here to participate in the survey.

Call for Participants!

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The Patient and Community Engagement Research (PaCER) Program at the University of Calgary is seeking participants for a project they are working on with the Cancer Strategic Clinical Network. This project will focus on breast health education supports available to patients. If you or someone you know underwent breast cancer surgery within the last two years, this is a project you may find of interest. Click here for more information.

Call for Participants

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Are you a parent or caregiver of a child who has experienced an inner ear infection or other related ear problem? Would you like to help develop educational resources for parents and caregivers concerning this topic? If so, a research team at the University of Alberta are looking for you. Click on the image below for more information. 

What We See and Don’t See

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seeingImagine what it would be like to be totally unaware that things exist in the world that cannot be seen. As such, emotions, for example, would not exist, let alone be understood. This was Kim’s reality for 54 years.

Kim’s brain is not great at seeing emotion. When she looks out at the world she physically sees all the things that most people see, but with much of the emotion subtracted. She sees the same tables, the planes, the trees … the people moving back and forth. But the feelings — particularly the subtle ones — are invisible. Though for most of her life she didn’t realize that.

“This is the interesting thing,” Kim says. “We believe our senses, so I didn’t know I was missing anything. If I’m seeing people talking and it simply looks like people are talking, why should I think that they might be feeling angry or sad or anything, if I’m not sensing that?”

However, thanks to some researchers and a magnet, Kim was able to “see” the unseeable for an hour. This hour of “seeing” has provided her with a greater understanding of the life she is living. To read the full story, click here.

Clinical Trials – To Participate or Not

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clinicaltrial
Clinical trials are becoming more popular and as such, the demand for participants is increasing. Unfortunately, oft times patients who are being asked to participate or are considering joining are unclear about the nature of the study and what their involvement would entail. This, in turn, makes deciding whether or not to get involved in the study more difficult.

To address this issue, The Center for Information & Study on Clinical Reseach Participation has a number of questions on its website that may be of assistance to individuals contemplating clinical trial involvement. Here are five of the questions they list.
1. What is the main purpose of this study?
2. Does the study involve a placebo or a treatment that is already on the market?
3. How will the treatment be given to me?
4. How long is the study going to last and what will I be asked to do as a participant?
5. What has been learned about the study treatment and are any study results published?

To reading the list, click here. What, if any, questions would you add to this list?

Patient/Family Partners Wanted

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Are you a Patient Family Partner in Canada? If so, you are invited to join a focus group or interview in person (Vancouver) or via telephone or webinar. To find out more about this exciting opportunity, click on the image below.

Call for Patient Family Partners

Please Note: The deadline to express your interest in participating in this project is May 31, 2016.

Call For Participants

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Call for participants
If you are or know of someone who is:

  • Over the age of 65;
  • Live in Alberta;
  • Have an annual household income of less than $50,000;
  • Have a high risk of a cardiovascular event based on having ONE of the following:Previous heart attack or stroke, chronic kidney disease, heart failure OR Any TWO of the following:Diabetes, high blood pressure, high cholesterol, current cigarette smoking (greater than half a pack a day)

this may be of interest to you.

Researchers at the University of Calgary are looking for 5000 low-income seniors to participate in a study that will focus on managing chronic disease. To find out more and how you can get involved, click here.