Battle Won!

Photo from CTV news article.

Destiny Robinson-Cooke has been fighting for over six years to get benefits related to her service dog, Sasha. Finally, on June 28, 2023, her battle was won.  Nevertheless, as Robinson Cooke correctly states, “‘A disabled person should not have to fight for a benefit they are entitled to.'” Click here to read the full article.

Without OB Services

What is it like to have no access to obstetric services? Join this discussion to find out.

Facility-based care?

Alberta Health is conducting a review that focuses on supportive living and long-term care in Alberta. The goal of this initiative is to improve “the lives of continuing care residents and their families, resident care outcomes, the satisfaction and quality of work environment of staff, and the cost effectiveness of facility-based continuing care service delivery.” Included as part of the review are the thoughts and input of Albertans regarding the future of facility-based continuing care in the province. Click here to share your ideas about this important issue.

Patient-Oriented Research Podcasts

If you are interested in Patient-Oriented Research, why not join Beverley Pomeroy and Lisa Ridgeway for SPORCast? This bi-weekly podcast discusses the Standards for Patient-Oriented Research from the west coast of Canada. To listen to previous podcasts and more, including the conversation with Andre Picard, check out the SPORCast podcast page.

Missing at Conferences?

Upcoming Webcast

What are you doing on June 24th at 12:00 p.m. EST? Here is a webcast that you may find interesting.

“Patient Engagement: Looking Towards the New Normal
In this session, Dr. Monica Reed will explore the evolution of patient engagement from the seeds of measuring “satisfaction” and tracking “experience” to building true collaborative “engagement.” With an eye to the future coupled with the lessons we can take from our collective response to the COVID-19 pandemic, Dr. Reed leverages research and patient stories to identify key components for building Patient Engagement Culture moving forward. Key focus areas include:
Consumerism and diversity
Advancing Technology
Collaboration throughout the care ecosystem.”

Click on the link below to register for this webcast.
http://go.xtelligentmedia.com/2020-6-24pCareWebcast?fbclid=IwAR2j6CmZiSD728-6AhBTGXjI4KFm9v9ICDNBqe-fgflQarpgzC8tcQAKLSk

“Let’s Get Real…”

If you are free on Thursday, October 10th from 10 a.m.-11 a.m. MT, you may wish to attend this free webinar. Based on the description of the session, it is going to be time well spent. Register here.

Join patient partners and thought leaders in an engaging panel discussion on the value of patient and family partnerships. Learn first-hand about what works well for partnering with patients and families, what doesn’t and tips for collaborating on your system transformation and organizational quality improvement initiatives. This webinar features panelists who have a range of collaboration experience, including at organizational, health system and policy maker levels.

Good Reminder

If you are interacting with patients, here is something important you might want to remember.

Saskatoon -A must see

If you live in Saskatoon or area, this is something you will want to check out. Atlthough this true event is incredibly sad, Greg’s Story has the potential of bringing about some positive changes to healthcare. In doing so, the hope is to see fewer people falling through the cracks.

Click here for more information and to register.

Get Involved and Add Your Voice

The Neurosciences, Rehabilitation, and Vision Strategic Clinical Network (NRV SCN) is looking for patient and family representatives to respond to their patient engagement survey.

  • The scope of this new SCN includes:
      • neurological disorders (including Parkinson’s disease, Multiple Sclerosis (MS), epilepsy, dementia and Alzheimer’s disease), neuromuscular disorders (including spinal cord injury and Amyotrophic Lateral Sclerosis (ALS, or more commonly, Lou Gehrig’s disease)), and brain injuries;
      • all forms of physical rehabilitation (which may include working with a physiotherapist, occupational therapist, speech pathologist, respiratory therapist, recreation therapist, audiologist, chiropractor, or other rehabilitation specialist); and
      • all eye disorders (including cataract, glaucoma, macular degeneration, diabetic vision loss and other eye disorders).
  • The combined results received from this survey will be reviewed by the NRV SCN Leadership Team, presented at an upcoming Core Committee meeting and used to help inform the priorities of this new SCN.
  • If these clinical areas are applicable to you as a patient and family advisor, we invite you to complete this survey, or share the survey link and attached poster with others who may be interested in providing input.
  • The survey is open from December 21st, 2018 until January 21st, 2019 and should take from 10-15 minutes to complete. It can be found here.