Are you interested in home (personal) health monitoring technologies and ways they can be used to improve patient care in Alberta? If so, here is an event you may find of interest.
Click here to read and download the forum information.
In case you have not heard the news, the Patient Engagement Reference Group (PERG) has a new voice. More specifically, it has created an e-newsletter called “the Voice.” Click here to read the first edition of what is sure to be an interesting newsletter.
Do you reside in Alberta? Are you interested in health research and patient engagement? If you answered “Yes” to both questions, you may wish to visit the Patient/Family Registry web page. In addition to discovering what is happening in the world of health research in Alberta, you can fill out an application form to get involved!
Are you a patient or family member who has experienced what it is like to go from the adult Intensive Care Unit to the Ward of a hospital? If so, the Department of Critical Care Medicine at the University of Calgary is inviting you to join in a facilitated session to discuss the transfer of care process. This session will be held on November 2, 2017; 10:00 a.m. to 3:00 p.m. in Room TRW2D39; Teaching, Research and Wellness Building, Foothills Campus, University of Calgary; Calgary, Alberta. Click here to read more.
In an earlier post, readers were invited to share any ideas they had concerning potential topics for the upcoming 2017 Quality Summit. Karla W. was one person who accepted this open invitation. Below is what she wrote.
“Over the past several years of [my] experience as a patient representative/advisor, the issue of remuneration for time spent as a “volunteer” has surfaced [during] discussions at the tables. Nationally, and provincially, it varies greatly (from zero – up) how organizations acknowledge patient advisors, as well [as how] different people on the same committees are acknowledged differently. I would like to encourage a discussion on this topic.”
Continuing on from an earlier post, below are some additional advisor-related topics that have been suggested for this year’s Quality Summit 2017.
Diversity and Healthcare – This could include such things as gender, sexual orientation, culture, ethnicity, age, disability etc. Diversity is a topic that applies to all populations, regardless of whether one is a patient, member of the community, healthcare provider, advisor, or healthcare professional.
Disparity and Healthcare – Socioeconomic status, poverty, accessibility and health/well-being.
Volunteer Burnout – What is volunteer burnout? What causes volunteer burnout? How can it be prevented?
What is the ideal healthcare system as seen from leadership, management, frontline staff, patient/family advisors. What are the frustrations and barriers associated with realizing this ideal?
What is an effective partnership for patient/family advisors and AHS staff?
Why does storytelling matter and how could it help in connecting with the person before the patient? Empathy vs. apathy.
Drawing from patient/family advisors across Canada, what are their frustrations, hopes, dreams and lessons learned with respect to their advisor role?
What are some advisory opportunities and innovative ideas and programs from Alberta and beyond?
What does meaningful involvement mean to patient/family advisors?
“[T]he meaningful involvement of patient and family advisors with healthcare, (where meaningful means for everyone involved – the advisors, front-line providers, research, operations, senior mgmt, etc.)”
“To what extent are patient and family advisors meaningfully involved with healthcare?” (where ‘meaningful = having a serious, important or useful quality or purpose’ … and reference to meaningful means for all stakeholders involved – the advisors themselves, front-line providers, research, operations, senior mgmt, etc.)”
Planning for the upcoming Quality Summit 2017 is underway. To this end, members of the Patients 4 Change (Pts4Chg) community were asked to provide their thoughts on what they would like to see at the summit. During a recent Pts4Chg community telephone chat, which focused on the Quality Summit 2017, one of the key ideas raised was the need to talk about the “elephant in the room,” as it relates to partnering with Patient/Family Advisors.
While it is true that these topics may be difficult to raise and cause some angst and discomfort when discussed, by pretending that such issues do not exist and hence failing to address the elephant in the room, genuine collaboration and engagement with advisors is not apt to occur.
Below are some of parts of the elephant the Pts4Chg community identified.
Fear of including advisors
Wasting advisors’ time energy and experience
Exploitation versus engagement – When does inclusion become exploitation?
Partnership versus Tokenism
Click here to read more from the recent Pts4Chg conversation. If you have any ideas, suggestions or comments pertaining the following four areas, you are welcome to reply as a response to this post.
What advisor-related topics would you like to see included at the Summit?
What speakers would you like to have as part of the advisors’ sessions?
What format would you like to see for the advisors sessions? For example, formal presentation, workshops, breakout session, etc.?
On Saturday, February 25th, some members of the Patients 4 Change community participated in the “Coldest Night of the Year” walk. This annual event saw hundreds of Calgarians bundling up and trekking 2, 5 or 10 km to raise money for the homeless, hungry and hurting.
Not only was this a great way to help others in the Calgary community, it also was a lot of fun. In fact, the Pts4Chg members, who walked under the name of “Team Goose Bump,” got so caught up in the excitement and conversation that they walked two blocks past a key corner that was to take them to the finish line. What’s a few more blocks added to a 10km walk?!