If you will be in Calgary or area on the evening of August 29/2018, this may be an event you want to attend. Given that dementia is becoming a reality for more people, the information provided is apt to be relevant to you or someone you know.
Do you live or work in the province of Alberta and are you:
- an older adult (65 years of age and over),
- a caregiver of an older adult (spouse; family member; friend; neighbour), or
- a clinician or health/social care provider (doctor; nurse; care aides; allied health provider; pharmacist; social worker) working with older adults?
If so, the Scientific Office of Alberta’s Seniors Health Strategic Clinical Network invites you to complete the following survey. By responding to the survey, you will be helping to determine the direction/priorities for future research and initiatives in the area of seniors’ health.
In an effort to raise the voice of caregivers, Carers Canada and the Canadian Home Care Association are seeking friends and family members who care for a person with Alzheimer’s disease and other dementias to share their experience by completing a private and secure on-line survey. The survey should take about 15 minutes to complete.
- Feedback received from this survey will be used to inform the federal government in advancing Bill C-233, an Act respecting a national strategy for Alzheimer’s disease and other dementias. This Act directs the federal Minister of Health to develop and implement a comprehensive national strategy for the care of people living with Alzheimer’s disease or other forms of dementias, as well as their families and caregivers.
- Please note that the survey closes on February 5, 2018.
There are some events that leave a person speechless. This is one of them.
Darlene, a member of our Pts4Chg community, was critical in making September – Pulmonary Fibrosis Awareness Month – in Edmonton! If you or someone you know suffers from pulmonary fibrosis, this free patient forum may be of interest to you. The event will be held on September 27th from 9:00 a.m. – 3:30: p.m. in Edmonton. Click here for more information.
Congratulations again, Darlene, on a job well done!
Oft times, patients and families are hesitant to express their complaints and concerns relating to a particular care facility. The source of this hesitation can be from a deep sense of fear – the fear of retaliation. While in most cases no negative repercussions result when a complaint or concern is raised, such is not the case in a long-term care facility in Ontario, Canada.
According to a retired hospital nurse and daughter of a resident at the care facility, she is no longer able to stay in her mother’s room while her mother is being cared for by the staff. The reason for this restriction is because of the complaints the daughter made about the substandard care and dangerous hygiene practices she witnessed. “You complain and this is the price you pay.” What does this say about the facility’s view of family presence?
Click here to read the full story.
For many people, going to the doctor’s office can be a stressful, anxiety generating, uncomfortable experience. One can only imagine what an indigenous individual would feel upon entering his/her doctor’s office and being greeted by sign that said the following:
“Attention: native patients please don’t ask for tranquilizers or pain medications.”
Maxine Ginnish, who works at the Rising Sun Healing Centre, and took a photograph of the note posted at her doctor’s office is seeking an apology. Click here to read the full story.
If you are from Alberta, have lived experience with depression, and are interested in depression research, you may wish to participate in an online survey conducted by Alberta SPOR SUPPORT Unit, Patient Engagement Platform, Alberta Health Services and Canadian Depression Research and Innovation Network. By completing this survey, you will assist in determining the top 25-30 depression research questions to be used for an upcoming workshop. What questions matter most to you?
Click here to participate in the survey.
What do Livongo, MyHealthTeams, Health Decision Technology, Wellness Layer and Sensely have in common? In addition to them all having an online presence, they are also focusing on chronic disease management. Key to this management, or more specifically self-management, is to help people with chronic diseases, or loved ones with such conditions, connect with others – patients, coaches, etc. Through these connections, the hope is that the financial and physical burden being experienced will be reversed or in someway lessened. Click here to discover more about these initiatives.